248611 Program adaptation for the real world: Using principles of community-based participatory research to create culturally-adapted programs for underserved communities

Tuesday, November 1, 2011: 1:15 PM

Emily Chen , Human Development, Cornell University, Ithaca, NY
Karl Pillemer, PhD , Human Development, Cornell University, Ithaca, NY
Samantha Parker , Division of Geriatrics and Gerontology, Weill Cornell Medical College, New York, NY
Josie Piper, RN, MA , Site Director, Central Harlem Senior Center, New York, NY
Evelyn Laureano, PhD, LMSW , Executive Director, Neighborhood Self Help By Older Persons Project (SHOPP), Bronx, NY
Julia Schwartz-Leeper, LMSW , Executive Director, Riverdale Senior Services, Bronx, NY
M. Carrington Reid, MD, PhD , Division of Geriatrics and Gerontology, Weill Cornell Medical College, New York, NY
Self-management programs have been created for a range of chronic conditions and have been found in a number of cases to be effective. However, a need has been identified for the adaptation of such programs for diverse cultural and ethnic groups, with the goal of increasing the uptake and therefore the reach of these programs. This research used principles of community-based participatory research to modify an evidence-based program for self-management of arthritis pain, the Arthritis Foundation Self-Help program (AFSH). A community-university researcher partnership was created with three senior centers in New York City in order to understand how the AFSH program might be modified to meet the needs of specific groups of older adults. Each center respectively served White, Hispanic, or African American older adults. A systematic approach was taken to program modification, which included 1) creation of a community steering committee; 2) delivery and evaluation of the standard AFSH program to 113 participants across the three centers; 3) weekly interviews with participants of the standard program regarding content and areas for improvement; 4) focus group sessions with participants and instructors regarding adaptation; and 5) shared decision-making by community members and content experts on how best to implement the adaptation suggestions. This process resulted in culturally-adapted programs that maintained the principal program characteristics while incorporating modifications suggested by community partners. We review the multi-step adaptation process, present participants' suggestions for modification, describe the revised program curriculum, and present findings from the evaluation of the adapted program.

Learning Areas:
Diversity and culture
Implementation of health education strategies, interventions and programs
Planning of health education strategies, interventions, and programs

Learning Objectives:
Design an adaptation model that incorporates participant and community feedback while preserving program effectiveness. Discuss the potential for cultural adaptation of evidence based-programs to improve program effectiveness.

Keywords: Community-Based Partnership, Evidence Based Practice

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I am a graduate student studying community-based research methods, chronic pain, and the health of older adults.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.