251313 It Takes a Village-Community Engagement Promotes Optimal Biobank Research

Tuesday, November 1, 2011: 3:06 PM

Jennifer Wroblewski, MPH , Northwest Association for Biomedical Research, Seattle, WA
Developing successful biorepositories research that improves maternal and child health relies on trusted partnerships between engaged participants (the public) and investigators. Much can be learned from community based participatory research. Best practices for community engagement include 1) becoming knowledgeable about the community and its members to build relationships 2) communication during all phases of research that reflects respect (understanding goals of both investigators and participants, true informed consent, roles and responsibilities, returning results, reconsenting, planning implementation of discoveries into clinical practice), 3) wise yielding of control to the community and remaining flexible, and 4) capacity building that is rooted in the community's commitment, strengths, and values.

Applying these practices is also important for general populations, whose specimens have been and will be collected for repositories (newborn screening programs, residual tissues from biopsy, etc.). Members of the public enjoy the vital health benefits of biomedical research, but are generally unaware of the process that generates new treatments and cures, or the ethical standards that guide scientists. To ensure continued support for research it is necessary to promote understanding of emerging methods, like biorepositories, used in biomedical research and also to assure trusted practices are utilized.

Learning Areas:
Basic medical science applied in public health

Learning Objectives:
Describe how research repositories will improve our understanding of pregnancy. Discuss the important role pregnant women play in advancing research. Identify opportunities to engage communities and build trust with the women who are participating in the research. List of epidemiological data collected throughout pregnancy as part of this research that can serve as a rich resource for public health experts.

Keywords: Community Participation, Maternal and Child Health

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I am qualified to present because I develop programs that promote public engagement in translational biomedical research.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.