251766 CDC Use of child functioning and disability measures in surveys and surveillance

Monday, October 31, 2011: 3:15 PM

Gloria L. Krahn, PhD, MPH , National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, GA
There is a pressing need for child disability identifier question sets that identify children's functioning within a developmental and cultural context. Current practice is to draw on multiple data sources that use diverse means to identify functional limitations or special needs.

The panel will address: Whom do we want to identify? What questions will do that? What additional information do we want? This specific presentation will a) identify requirements and challenges in using the data from surveys with a child disability identifier set, b) demonstrate comparisons of survey-derived data with case-verification surveillance, and c) advance an ICF-based conceptual framework for developing extended items on age-appropriate outcomes that predict to adult participation.

After a decade of testing adult functioning and disability question sets, resolution towards standardization appears forthcoming. These efforts can inform development of child and adolescent questions. Additional challenges include accounting for normative developmental changes in functioning; reliance on parental report; and diverse cultural expectations.

CDC regularly uses data from extant child and adult disability surveys. We will illustrate comparison of findings of survey data with those of case-verified surveillance; items that worked well and those yieldeing misleading findings. Finally, the session will propose use of the Life Course Model for child disability to inform development of extended questions. This model, based on the ICF, illustrates developmental achievements at different developmental stages along the three life domains of self management of health, social relationships, and education/employment. All are intended to contribute to successful transition to adult participation.

Learning Areas:
Public health or related public policy
Social and behavioral sciences

Learning Objectives:
Attendees will be able to identify requirements and challenges for developing a short set of questions to measure child functioning and disability in population-based surveys Attendees will understand methods for evaluating the performance of identifying question sets Attendees will be able to describe a conceptual framework for developing extended items that are age-appropriate and predict to adult participation outcomes.

Keywords: Children With Special Needs, Surveillance

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: trained in public health and disaility (PhD, MPH); past program chair and Section Chair for APHA Disability Section; review board of Disability and Health Journal
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.