253482 Providing a Healthy Environment to Patients with Cancer and Blood Disorders: The Hematology, Oncology, and Stem Cell Transplantation (HOT) Healthy Living Initiative

Wednesday, November 2, 2011

Stephanie Pelligra, MPH , Hematology, Oncology and Stem Cell Transplantation, Children's Memorial Hospital, Chicago, IL
Alexis Thompson, MD, MPH , Hematology, Oncology and Stem Cell Transplant, Children's Memorial Hospital, Chicago, IL
Background: Pediatric Hematology-Oncology-Transplantation (HOT) encompasses a wide array of serious medical conditions. Chemotherapy may dramatically change one's sense of well-being and alter family interactions that previously supported balanced meals and physical exercise. Some sickle cell patients have reduced exercise tolerance and eating habits that cannot sustain their increased resting energy expenditures. Hemophiliacs may be less active to avoid painful bleeding into joints. The HOT Healthy Living Initiative (HOTHLI) seeks to assist children in our care and their families in achieving their goals for health and wellness. Methods: A multi-disciplinary team designs and implements creative projects including in-clinic demonstrations of nutritious food preparation and physical fitness. Bulletin boards provide information on wellness themes. A wellness prescription facilitates dialogue between providers and families during clinic visits. HOTHLI collaborates with health-oriented community-based organizations. HOTHLI has implemented a 4 week nutritional and physical activity pilot intervention project (ReCharge) focused on improving self esteem. Results: Preliminary feedback from families and staff has been extremely positive. 86% of participants responded positively when asked if the in clinic demonstration taught them something new about being healthy. 100% responded that the lesson was fun. We found that 91.7% of parents stated that after participation in the ReCharge pilot program, their child spoke with them about healthy eating and setting physical activity goals. Discussion: HOTHLI is a unique and innovative program that focuses specifically on the overall health and wellness of children with cancers and blood disorders. Successful disease treatment must include ongoing support for long term healthy living.

Learning Areas:
Administer health education strategies, interventions and programs
Chronic disease management and prevention
Implementation of health education strategies, interventions and programs
Planning of health education strategies, interventions, and programs
Public health or related research

Learning Objectives:
Describe the Children's Memorial Hospital Hematology, Oncology, and Transplant (HOT) Healthy Living Initiative. Demonstrate the programs ability to assist children with blood disorders and cancers in achieving their goals for health and wellness through in-clinic demonstrations, a wellness prescription, and a clinical research study.

Keywords: Children's Health, Chronic Diseases

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I am qualified to present because I coordinate programs focused on health and wellness, adolescent transition, and education for children with blood disorders and cancer.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.