254727 Using a community-based participatory research approach to collect Hopi breast cancer survivors and their families' stories about breast cancer treatment

Sunday, October 28, 2012

Felina Cordova, MPH , College of Public Health, University of Arizona, Tucson, AZ
Lori Josheweseoma, MPH , Hopi Cancer Support Services, Hopi cancer support services, Kykotsmovi, AZ
Nicolette Teufel-Shone, PhD , Associate Professor, University of Arizona, Mel and Enid Zuckerman College of Public Health (UA MEZCOPH), Tucson, AZ
Kathryn Coe, PhD , Public Health, Indiana University-Purdue, Indianapolis, IN
INTRODUCTION AND OBJECTIVES: Breast cancer is the most frequent cancer endured by women on the Hopi Reservation in northern Arizona. Women diagnosed with breast cancer and their families need knowledge of how other women living on the reservation have successfully survived breast cancer. Focus groups were used to explore local barriers to breast cancer treatment compliance. Insights gained were incorporated into digital stories designed for the Hopi Women's Health Program (HWHP) as an educational/navigational tool for newly diagnosed Hopi women with breast cancer and their family supporters. METHODS: Focus group participants representing three different groups were recruited: Hopi female breast cancer survivors, family supporters of Hopi breast cancer survivors and HWHP staff and community health workers (CHW). RESULTS: Based on 3 focus group outcomes, conceptual themes were identified and included in the eight stories created. Story topics were: HWHP information, breast cancer support systems, surviving breast cancer, treatment side effects and family support. DISCUSSION: The strengths of the project included the development of a strong collaboration with the HWHP, the integration of local perspective in a health education tool and the successful application of a community based participatory research (CBPR) approach in a Native community. The primary limitation of the project was the small number of participants.

Learning Areas:
Diversity and culture
Public health or related research

Learning Objectives:
1. To demonstrate community-based participatory research methods, in collaborating with a tribal organization. 2.Discuss (at focus groups) the breast cancer treatment process with Hopi Breast cancer survivors and their family supporters. 3. Analyze focus group data and determine themes in the Hopi breast cancer treatment process 4. Design and create digital stories from themes that describe the breast cancer treatment process. Digital stories to be used for newly diagnosed Hopi breast cancer patients and their families.

Keywords: American Indians, Cancer

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I have been the principal investigator on this original research project and have also worked with other American Indian organizations. I have also been published in peer-reviewed journals for other scientific work and have also been a published author in several textbooks. I have my masters degree in public health and am currently a doctoral candidate at the University of Arizona's college of public health.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.