255912 Chronic conditions, disability and health service use among U.S. working age adults with chronic health care needs: Adapting the non-categorical approach to population identification and measurement

Tuesday, October 30, 2012

Stephen Gulley, PhD, MSW , Clinical Research Center, Department of Rehabilitation Medicine, National Institutes of Health, Bethesda, MD
Elizabeth K. Rasch, PT, PhD , Clinical Research Center, Department of Rehabilitation Medicine, National Institutes of Health, Bethesda, MD
Leighton Chan, MD, MPH , Clinical Research Center, Department of Rehabilitation Medicine, National Institutes of Health, Bethesda, MD
Adults with chronic conditions and people with disabilities are overlapping population groups with many shared healthcare concerns. Yet, rarely have these two groups been considered together. While population-level measurement based on a non-categorical approach has been successfully used to bridge these groups among children with special healthcare needs, this approach has not been implemented for the working aged. In order to provide a preliminary profile of Adults with Chronic Health Care Needs (ACHCN), we pooled data from the 2006-2008 Medical Expenditure Panel Survey. We identified ACHCN on the basis of having one or more health / mental health conditions expected to last at least 12 months and known to require ongoing medical intervention and/or result in some degree of disability. Overall, we found that potentially half of working aged adults have a chronic health care need. On average, ACHCN reported over two chronic conditions and over two acute conditions during each year. When compared to adults without chronic health care needs, total annual medical expenditures for ACHCN were over four times as high. In multivariate models, we found that ACHCN have higher rates of access problems, significantly elevated use of most ambulatory services and substantially higher risk of hospitalization compared to adults without chronic health care needs. Among ACHCN, health conditions, access problems, service use and expenditures were most heavily concentrated among people with disabilities, particularly individuals with ADL/IADL limitations. These findings suggest the need for new population-level measurement and surveillance approaches that transcend medical diagnosis.

Learning Areas:
Chronic disease management and prevention
Epidemiology
Provision of health care to the public

Learning Objectives:
At the conclusion of this session, the participant will be able to: 1) Explain a non-categorical approach to identifying long term need for services as it differentially applies to children with special health care needs and working age adults with chronic conditions and/or disabilities; 2) Evaluate both the strengths and limitations of using ongoing, elevated health service needs as a means of identifying Adults with Chronic Health Care Needs (ACHCN) in health services research and practice; 3) Describe the potential size, service use and health care expenditures among ACHCN as a whole and among key disability subgroups of this population based on nationally representative data.

Keywords: Chronic Illness, Disability

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I have worked on multiple research projects concerning CSHCNs and adults with chronic conditions / disabilities in both university and federal (NCHS, NIH) settings. I have published in this area extensively and have previously presented at APHA and other national conference venues (Academy Health, Society for Disability Studies, American Sociological Association, etc.).
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.