257485 Community-based participatory research – “It's not always perfect, but it works”

Tuesday, October 30, 2012

Cynthia Miller , Division of Public Health Sciences/Department of Social Sciences and Health Policy, Wake Forest School of Medicine, Winston-Salem, NC
Stacy Duck, BA , 401A North Ivey Ave, Chatham Social Health Council, Siler City, NC
Michael Reece, PhD , Dept of Applied Health Science, Indiana University-Bloomington, Bloomington, IN
Mario Downs , Department of Social Sciences and Health Policy, Division of Public Health Sciences, Wake Forest University School of Medicine, Wake Forest University School of Medicine, Winston-Salem, NC
Jorge Alonzo, JD , Department of Social Sciences and Health Policy, Wake Forest School of Medicine, Winston-Salem, NC
Robert Aronson, DrPH , Department of Public Health Education, University of North Carolina at Greensboro, Greensboro, NC
Jason Stowers , Triad Health Project, Greensboro, NC
Jason D. Daniel, PhD , Social Sciences and Health Policy, Wake Forest University School of Medicine, Winston-Salem, NC
Addison Ore , Triad Health Project, Greensboro, NC
Beth A. Reboussin, PhD , Department of Biostatistical Sciences, Wake Forest School of Medicine, Winston-Salem, NC
Eun-Young Song, PhD , Department of Social Sciences and Health Policy, Wake Forest University School of Medicine, Winston-Salem, NC
Scott Rhodes, PhD, MPH, CHES , Department of Social Sciences and Health Policy, Wake Forest School of Medicine, Winston-Salem, NC
Background: Our community-based participatory research (CBPR) partnership, comprised of community members, organizational representatives, business leaders, and academic researchers, has >10 years of successful, extramurally funded research. Members of our CBPR partnership sought to identify predisposing, reinforcing, and enabling factors influencing our approach to CBPR. We also sought to identify challenges to partnerships and CBPR.

Methods: Data were collected by a well-trusted external researcher, who had postdoctoral CBPR training and experience, using a semi-structured in-depth interview guide. Interviews were conducted with partnership members individually and in small groups over multiple time points. The partnership also engaged in a facilitated visioning process. Findings from these two activities were reviewed and interpreted by partnership members through an adapted nominal group process.

Results: A wide spectrum of factors and challenges were identified. Predisposing factors identified included: a commitment to social inclusion; a “can-do attitude”; and alignment among partner priorities, organizational missions, and research questions. Reinforcing factors included: operationalized principles of partnership; friendship among partners; immediate use of findings by partners; and building on a successful history of CBPR. Enabling factors included: organizational capacity to move beyond service; financial stability of organizations involved; and partner and funder flexibility to protocol revisions during study implementation. Challenges identified included: becoming dependent upon research agenda as a motivating factor for organization direction/programming; and having passion for a “cause” is not sufficient.

Conclusions: CBPR is effective to identify priorities and promote positive community change. The context of authentic CBPR requires a firm foundation and ongoing partner commitment and dedication.

Learning Areas:
Conduct evaluation related to programs, research, and other areas of practice
Diversity and culture
Implementation of health education strategies, interventions and programs
Planning of health education strategies, interventions, and programs
Public health or related research

Learning Objectives:
By the conclusion of the presentation, the participant will be able to: (1) List the partners and describe the structure and research of an established CBPR partnership in North Carolina; (2) Outline the predisposing, enabling, and reinforcing factors considered to be key to the partnership’s success in both participation and research; (3) Explore the challenges faced by this partnership; and (4) Apply findings to future research needs in terms of the application of CBPR approaches.

Keywords: Community Participation, Community Research

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I am an academic research partner of CBPR partnership that has been in existence for 10 years and has multiple NIH and CDC funded CBPR projects
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.