259586 Barriers and Facilitators to Minority Research Participation: A Comparison across African Americans, Latinos, Asian Americans and Pacific Islanders

Monday, October 29, 2012 : 8:45 AM - 9:00 AM

Sheba George, PhD , Center for Biomedical Informatics, Charles R. Drew University of Medicine and Science, Lynwood, CA
Nelida Duran, MS, RD , Community Health Sciences, UCLA School of Public Health, Los Angeles, CA
Keith Norris, MD , Charles Drew University of Medicine and Science, Los Angeles, CA
Although the literature on barriers and facilitators to racial and ethnic minority participation in clinical research has burgeoned over the past decade, most of this scholarship has focused on African Americans. There are fewer studies that include a spectrum of multicultural populations and a comparative understanding of the factors that enhance or deter their likely participation and retention in clinical research. This is a very important gap in knowledge, given the growing racial and ethnic diversity in the U.S. population.A systematic review was conducted to answer the question: What are the experienced or perceived barriers and enablers to participating in health research for U.S. ethnic minority populations, notably African Americans, Latinos, Asian Americans and Pacific Islanders. Titles, abstracts, and manuscripts were selected from a literature search conducted on PubMed and Web of Science between January 2000 and August 2011.Out of 163 articles retrieved, 44 articles were included. Similarities and differences in perceptions and experiences across the four groups are presented in tables listing unique and shared barriers and enablers. While there were different degrees of mistrust regarding research across all groups, they also expressed interest in learning about research and a willingness to participate for altruistic reasons embedded in cultural and community priorities.The comparison of findings across the four racial/ethnic groups demonstrates the importance of contextualizing participant recruitment and retention strategies among these populations by attending to community and cultural congruence in the research design.

Learning Areas:
Diversity and culture
Social and behavioral sciences

Learning Objectives:
List community and individual level barriers and enablers to research participation for the four racial/ethnic minority groups presented. Compare the cultural differences and similarities in the factors that contribute to effective recruitment and retention strategies for the four racial/ethnic groups presented.

Keywords: Minority Research, Community Participation

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I am qualified to present because I have focused on health disparities research with multicultural groups over the past decade. Using this literature review, I have also developed an animated video in both English and Spanish for the purpose of recruitment of racial/ethnic minorities into health research. I also serve as assistant professor in a school of Medicine and collaborate with several communities in conducting my research.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.