262903 Native American cancer 101 education modules

Wednesday, October 31, 2012 : 12:45 PM - 1:00 PM

Linda Burhansstipanov, DrPH , Founder, National Grants, Native American Cancer Research Corporation, Pine, CO
Paulette Baukol, BS , Native American Programs, Mayo Clinic Spirit of EAGLES, Rochester, NY
Dana Kontras, MSN , General Clinical Studies Unit Davis Bldg 533E, Mayo Clinic Jacksonville, Jacksonville, FL
Kerri Lopez, BS , Northwest Portland Area Indian Health Board, Portland, OR
Linda U. Krebs, PhD, RN, AOCN, FAAN , College of Nursing, University of Colorado Denver, Aurora, CO
Lynne Bemis, PhD, RN, AOCN, FAAN , Medical Oncology, University of Colorado Denver, Aurora, CO
Judith Kaur, MD , Medical Oncology, Mayo Clinic Spirit of EAGLES, Rochester, MN
Mayo Clinic's Spirit of Eagles, in conjunction with the Northwest Portland Area Indian Health Board, sponsored the development of the original (2004) and revised (2011) generic versions of Cancer 101, a program that is disseminated nationwide by the Cancer Information Service. Three new modules were added to the curriculum in 2011: Role of Genes (module 4), Biospecimens and Biobanking (module 8) and Chronic Conditions and Cancer (module 9). The generic version is designed to be presented in its entirety through an 8-hour workshop with each module lasting ~30-45 minutes. Spirit of EAGLES identified a Working Group to modify the 3 generic modules into culturally appropriate Native American versions. The Working Group, while recognizing the original program's time specifications, focused on cultural modifications, adding participant interactive activities, stories and examples from Native communities as well as modifying the literacy level to make complex issues such as genetics more understandable. Although cultural issues vary greatly among the 565 federally recognized tribal Nations, some concerns, such as use of specimens for a single study rather than storage in a repository, are common and were included in the revised content. Revisions expanded the presentation time for each revised module to ~90 minutes each. Excerpts of the 3 modules were implemented with 100 Native American young professionals and community members during early spring 2012. Learning increased from pre- to post workshop assessment for each of the 3 culturally appropriate workshops.

Learning Areas:
Advocacy for health and health education
Diversity and culture
Ethics, professional and legal requirements
Other professions or practice related to public health
Public health or related education
Social and behavioral sciences

Learning Objectives:
1. Identify at least 3 American Indian cultural modifications or tailoring functions added to the generic Cancer 101 modules 4 (genes), 8 (biospecimens) and 9 (chronic conditions). 2. Describe how culturally appropriate content and participant interactive activities increase workshop participants’ knowledge and perceived behaviors.

Keywords: Native Americans, Curricula

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: Dr. Burhansstipanov (Cherokee Nation of Oklahoma) has developed, implemented and evaluated health education curricula locally, regionally, nationally and internationally. She has worked in public health since 1971, primarily focusing on Native American cancer issues and has more than 100 peer-reviewed published articles.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.