263809 Knowledge, attitudes and beliefs on biospecimen research among Pacific Islanders: A community based participatory research project of the WINCART Center (Weaving an Islander Network for Cancer Awareness, Research and Training Center)

Tuesday, October 30, 2012 : 1:00 PM - 1:15 PM

Patchareeya Kwan, PhD, MPH, CHES , School of Community and Global Health, Claremont Graduate University, Claremont, CA
Greta Briand , Marshallese Christian Center, Costa Mesa, CA
Lisa Daylo , Guam Communications Network, Long Beach, CA
Cevadne Lee , School of Community and Global Health, Claremont Graduate University, Claremont, CA
Jonathan Lepule , California State University Fullerton, Fullerton, CA
Annette Orne , Guam Communications Network, Long Beach, CA
Victor Kaiwi Pang , Pacific Islander Health Partnership - `Āinahau o Kaleponi Hawaiian Civic Club, Santa Ana, CA
Ruth Peters, MPH , Department of Health Science, California State University, Fullerton, Fullerton, CA
James Pike , California Academic Media Services, Burbank, CA
Nicole Robello, MA , Pacific Islander Health Partnership - `Āinahau o Kaleponi Hawaiian Civic Club, Santa Ana, CA
Melanie Sabado, MPH , School of Community and Global Health, Claremont Graduate University, Claremont, CA
Lola Santos , Guam Communications Network, Long Beach, CA
Liliani Stiffler , Union of Pan Asian Communities, San Diego, CA
Sora Park Tanjasiri, DrPH , Department of Health Science, California State University, Fullerton, Fullerton, CA
Vanessa Tui'One , Tongan Community Service Center, Tongan Community Service Center, Hawthorne, CA
Dorothy Vaivao, BA , Samoan National Nurses Association, Long Beach, CA
Paula H. Palmer, PhD , School of Community and Global Health, Claremont Graduate University, Claremont, CA
Background The purpose of this community-based participatory research pilot project is to investigate the knowledge, attitudes, and beliefs that Pacific Islanders (PI) hold towards biospecimen collection, use, and banking all of which can aid in medical diagnosis and basic research. PIs are the focus of this research because of their under-representation in medical and behavioral research despite disproportionately high rates of certain cancers (cervical, breast, lung, etc.).

Methods A total of 60 PI adults living in Southern California completed a paper-and-pencil basic demographic questionnaire and a semi-structured one-on-one interview. PI community leaders and the academic/research staff work together in developing the study materials such as the recruitment flyer, questionnaire and interview items. Community partners recruited study participants and conducted the interviews.

Results Pacific Islanders from our study sample generally do not have trepidations with being involved in biospecimen-related research studies. They understand the benefits such studies have on cancer-related treatments. However, most agree that they would feel more comfortable providing samples if they were fully informed about the procedures and research involved plus be provided with results when it has been concluded.

Discussion In addition to utilizing the results to design and pilot a community education campaign, these findings will fill important knowledge gaps and inform health care providers, researchers, policy makers and communities about the factors that impact PI knowledge, attitudes, participation and utilization of beneficial biomedical and behavioral procedures related to reducing cancer disparities.

Learning Areas:
Administer health education strategies, interventions and programs
Assessment of individual and community needs for health education
Diversity and culture
Other professions or practice related to public health
Planning of health education strategies, interventions, and programs
Public health or related research

Learning Objectives:
1. Describe the current knowledge and attitudes that Pacific Islanders hold regarding biospecimen-related research. 2. Identify factors that improve Pacific Islander participation in biospecimen-related research.

Keywords: Bioethics, Cancer Prevention

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I currently serve as the Project Manager for the School of Community & Global Health at Claremont Graduate University and Weaving an Islander Network for Cancer Awareness, Research, and Training (WINCART) one of 23 National Cancer Institute funded Community Network Program Centers. I manage CBPR programs that contribute to reduction of cancer health disparities among Pacific Islanders and South Asians in Southern California. I am completing my MPH at Claremont Graduate University.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.