264875 Why CARE? ENACCT Tailoring of Culturally Appropriate Cancer Clinical Trials Education for African American Communities in North Carolina

Tuesday, October 30, 2012 : 8:30 AM - 8:50 AM

Margo Michaels, MPH , Executive Director, Education Network to Advance Cancer Clinical Trials, Bethesda, MD
Natasha Blakeney, MPH , Program Director, Education Network to Advance Cancer Clinical Trials, Bethesda, MD
Melissa A. Green, MPH , Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, Chapel Hill, NC
Al Richmond, MSW , North Carolina Institute of Minority Economic Development, Healthy Workplace Initiatives, Durham, NC
Debra Long, MS, RD, LDN , Crossworks, Inc., Rocky Mount, NC
William Robinson, MA , Black Men's Health Initiative, Durham, NC
Giselle Corbie-Smith, MD, MSc , TraCS Community Engagement Core, University of North Carolina-Chapel Hill, Chapel Hill, NC
Introduction African Americans in North Carolina experience an unequal burden of cancer mortality and underrepresentation in adult cancer clinical trials. Reversing this trend requires increasing cancer clinical trials awareness among minority populations and enhancing access to trials as a quality cancer care option. This abstract describes ENACCT's approach to tailoring its core cancer clinical trials education modules as part of the Community Bridges project.

Methods ENACCT conducted three Learning and Feedback sessions with Community Bridges project staff and four community based organizations serving African Americans in North Carolina. At each session, ENACCT demonstrated several education module segments, and then used qualitative ranking to solicit participant feedback regarding the content's culturally relevancy in terms of language, length, imagery, key messages and calls to action. Through facilitated group discussion, participants prioritized content features most in need of adaptation. Follow-up meetings were held to preview the revised content for further refinement.

Results ENACCT adapted the demonstrated modules into three revised formats, including a brief presentation with slides, a flexible “call and response” session, and a narrated role-play with guided discussion. Each included core key messages about cancer clinical trials, discussing African Americans' distrust of medical research, common misconceptions about trials, patient protections, and a call to action to prompt increased inquiry about locally available trials. Twelve African American community leaders participated in a train-the-trainer program to launch use of the revised modules.

Conclusion Use of an interactive feedback process is an effective approach to culturally tailor cancer clinical trials education for diverse populations.

Learning Areas:
Administer health education strategies, interventions and programs
Advocacy for health and health education
Assessment of individual and community needs for health education

Learning Objectives:
Describe methods for culturally tailoring cancer clinical trials education for minority populations

Keywords: Minority Health, Clinical Trials

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: As ENACCT Training Manager, I plan, manage and deliver live and online cancer clinical trials training to community leaders, health care providers, and cancer research staff. In addition, I coordinate implementation of multiple fee-for-service programs, offering customized technical assistance to cancer clinical trial stakeholder organizations.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.