266343 Assessing the Lives of Adolescents born with HIV in Thailand: A Coupled Life-Event History Approach to Adolescents and their Caregivers

Sunday, October 28, 2012

Sophie Le Coeur, Dr , Umr Ceped/IRD 174-Phpt, Institut National d'Etudes Demographiques (INED), Chiang Mai, Thailand
Eva Lelièvre , Institut National d'Etudes Demographiques (INED), Paris, France
Cheeraya Kanabkaew , Program for HIV Prevention and Treatment, Chiang Mai, Thailand
Children born with HIV infection who receive antiretroviral therapy have an increasingly high survival rate and are now entering adolescence. However, reports suggest higher rates of mortality in this age group. The objective of the “Teenagers Living with Antiretrovirals” (TEEWA) study is to assess the situation and needs of these adolescents. Adolescents born with HIV and receiving antiretroviral treatment, living in families or in orphanages, are recruited in 18 hospitals across Thailand. Self-administered questionnaires completed by the adolescents are linked with face-to-face interviews (life-event history approach) of their caregivers. The adolescent questionnaires explore household composition, school/employment, perceived health, reproductive health, relationships with adults/peers, leisure activities and plans for the future. Since some adolescents may not be aware of their HIV status, the self-administered questionnaire does not mention HIV or AIDS. The caregiver questionnaires assess the adolescents' family history, medical/HIV history, disclosure of HIV status, discrimination and household economic situation. A control group of adolescents randomly selected in the general population (matched on sex, age and residence with the HIV-infected children), and their caregivers, is also interviewed using the same approach. As of January 2012, 454 adolescents born with HIV, living in family settings and their caregivers have been interviewed. Preliminary results indicate that most adolescents have lost one (40.5%) or both parents (45.2%) suggesting complicated and potentially disruptive childhood histories and that the majority of caregivers (47.3%) are grand-parents. The survey design, its implementation and first results on the adolescents' family and living circumstances will be presented.

Learning Areas:
Assessment of individual and community needs for health education
Conduct evaluation related to programs, research, and other areas of practice
Diversity and culture
Public health or related research
Social and behavioral sciences

Learning Objectives:
Explain what is a life-event history survey. Explain what is a case-control study Explain why caregivers had to be interviewed in addition to adolescents List some of the problems faced by adolescents born with HIV in Thailand

Keywords: Children and Adolescents, HIV/AIDS

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I am the principal investigator of the study entitled "Teens Living with Antiretrovirals", and the co-investigator of several NIH funded clinical studies on HIV.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.