268791 Cancer Disparities Research Network : Bringing institutions and their communities together to reduce cancer disparities utilizing network assessment and development

Wednesday, October 31, 2012

Linda Fleisher, PhD, MPH , Office of Health Communications and Health Disparities, Fox Chase Cancer Center, Cheltenham, PA
Carrie Norbeck, MPH, CHES , Office of Health Communications and Health Disparities, Fox Chase Cancer Center, Cheltenham, PA
Melissa A. Simon, MD, MPH , Departments of Obstetrics and Gynecology and Preventive Medicine, Feinberg School of Medicine, Northwestern Unversity, Chicago, IL
Erika de la Riva, BA , Division of Gynecologic Oncology, Prentice Women's Hospital, Northwestern University, Chicago, IL
Venk Kandadai, MPH , Office Health Communications and Health Disparities, Fox Chase Cancer Center, Cheltenham, PA
Anthony Giannoumis, MPH , Temple University, Philadelphia, PA
Stacy Davis, PhD , Office of Health Communications and Health Disparities, Fox Chase Cancer Center, Cheltenham, PA
Cheryl Rusten, MPA , Office of Health Communications and Health Disparities, Fox Chase Cancer Center, Cheltenham, PA
Delroy Louden, PhD , Anguilla Community College, George Hill, Anguilla
Julian Schink, MD , Division of Obstetrics and Gynecology-Gynecologic Oncology, Northwestern University, Chicago, IL
J. Robert Beck, MD , Academic Affairs, Fox Chase Cancer Center, Philadelphia, PA
The CDRN, NCI's Region Five GMaP/BMaP Network, brings together community-engaged researchers, basic scientists and biospecimen and bioinformatics researchers to address the challenges in cancer disparities and biospecimen related research. The CDRN was built over 18 months and currently includes 19 institutions in 8 states. A Comprehensive Needs Assessment (CNAT) was conducted to acquire information relating to current practices, resources and needs of each institution; evaluate capacity to conduct cancer health disparities (CHD) research; assess collaborative potential in the region for conducting CHD research; and assess minority biospecimen collections and biobanking practices. The CNAT utilized a mixed methods approach of four instruments: A Principal Investigator Survey and Interview and a Pathology/ Biospecimen Facility Survey and Interview. The PI Survey was completed by 15 of 19 institutions, a 78.9% completion rate. Biospecimens surveys were received from 10 of 13 institutions (77 % completion rate). Key Informant Interviews were conducted with 17 Principal Investigators and 11 Biospecimen Facility Administrators. Data from the CNAT were used to determine the region's strengths (e.g. research in barriers to screening and health literacy) and weaknesses (e.g., experience conducting biospecimens awareness and education research), and to develop an implementation plan (IP) to structure future growth activities, establish short and long term objectives, identify areas for future funding, and outline a five-year plan for collaborative research or support. Ultimately, strategies for increasing minority and medically underserved populations' participation in clinical and biospecimens related research will be identified.

Learning Areas:
Administration, management, leadership
Assessment of individual and community needs for health education
Conduct evaluation related to programs, research, and other areas of practice
Planning of health education strategies, interventions, and programs

Learning Objectives:
1. Describe the Cancer Disparities Research Network (CDRN), NCIís Region Five Geographical Management Program/Biospecimen Management Program, a community-engaged approach to address cancer disparities. 2. Describe how universities, cancer centers and minority-serving institutions are able to use community-based participatory research approaches to address cancer health disparities. 3. List several network-building activities, including key elements to successful collaboration that can be utilized to strengthen partnerships and collaborative research endeavors. 4. Discuss how the development and analysis of a Comprehensive Needs Assessment utilizing quantitative and qualitative approaches can strengthen and define a network. 5. Identify how a network approach is a key method for addressing some of the gaps in cancer disparities and biospecimen research.

Keywords: Health Disparities, Collaboration

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I have over 25 years of experience in health education, health communications and cancer control interventions and research and have worked closely with a variety of local, state and national organizations. I have developed numerous health education materials and resources, conducted program evaluations and research projects. My interests have focused on the integration of service and research, especially in the areas of health communication and community-based initiatives.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.