270254 Disparities in healthcare transition services: Why don't youth with Autism Spectrum Disorder receive the services needed to transition into adult care and life?

Monday, October 29, 2012 : 5:11 PM - 5:29 PM

Nancy Cheak-Zamora, PhD , Health Sciences, University of Missouri- Columbia, Columbia, MO
Xuejing Yang, MPH , Department of Public Health, University of Missouri- Columbia, Columbia, MO
Approximately 500,000 youth with disabilities make the transition from a pediatric to an adult provider each year. Healthcare transition services (HTS) assists this progression and enhances independence for youth with disabilities. However, there are no studies examining the prevalence of HTS among youth with Autism Spectrum Disorder (ASD). The purpose of this study is to contrast the prevalence of HTS among youth with ASD and those with other disabilities. This study used data on youth represented in the 2005-2006 National Survey of Children with Special Health Care Needs (n = 18,198). Adequate HTS was classified as having a discussion with your healthcare provider about: transitioning to an adult provider, adult healthcare needs, health insurance continuation and taking on more responsibility. Chi-square tests identified the proportion of youth with HTS and variation based on type of disability. Logistic regression models explored whether having HTS was associated with individual, family and health system variables. Youth with ASD received adequate HTS less often than youth with other disabilities (21.1% vs. 42.5%, p<.01). They were significantly less likely to receive discussions about: transferring to an adult provider, adult healthcare needs, and taking on more responsibility (p<.01). Predictors of adequate HTS differ for youth with ASD when compared to those with other disabilities and included only severity and system variables. Youth with ASD have a tremendous need for transition services but receive them half as often as youth with other disabilities. This disparity must be further examined and addressed by researchers, providers and family members.

Learning Areas:
Basic medical science applied in public health
Conduct evaluation related to programs, research, and other areas of practice
Planning of health education strategies, interventions, and programs
Public health or related public policy
Public health or related research
Social and behavioral sciences

Learning Objectives:
Evaluate the level of access youth with Autism Spectrum Disorder have to healthcare transition services. Compare differences in access to healthcare transition services among youth with various disabilities. Assess what variables predict adequate healthcare transition services for youth with disabilities.

Keywords: Disability Policy, Access and Services

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I have been working in health services and outcomes research for over 5 years with a primary focus on people with disabilities and chronic conditions. I conducted and/or supervised all analysis related to the project.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.