270268 Identifying sexual orientation and gender identity in clinical settings in order to better understand and address LGBT health disparities

Tuesday, October 30, 2012 : 8:30 AM - 8:45 AM

Judith Bradford, PhD , Director of the Center for Population Research in LGBT Health, The Fenway Institute, Boston, MA
Chris Grasso, MPH , The Fenway Institute, Fenway Health, Boston, MA
Harvey Makadon, MD , Fenway Institute, Boston, MA
Sean Cahill, PhD , Fenway Institute, Boston, MA
Issues: Healthcare reform underscores the need for accurate information on patients' sexual orientation and gender identity. The IOM report on LGBT health recommends collecting these measures in electronic health records (EHR) as part of the meaningful-use objectives for the Office of the National Coordinator for Health Information Technology (HIT). EHRs and HIT enable secure, timely access to information, benefiting patients through better health care decisions and more coordinated care. Description: Sexual orientation measures have been field-tested; gender identity measures have not been similarly examined. These challenges were recently explored in a clinical setting. Two sexual orientation question-sets were rotated on the patient registration form to assess demographic differences and refusal rates. A community advisory board and research staff conducted a mixed methods survey about best ways to ask about gender identity on the form. Lessons learned. Without relevant, tested information, providers in clinical settings cannot address the unique concerns of LGBT patients. Providers may be uncomfortable or not know how to gather this information from their patients. Including patients in the design of data collection systems may increase their confidence in the clinical setting and facilitate better provider-patient communication. Recommendations: Presenters will describe and provide results about effective ways to gather sexual orientation and gender identity from patients in a community health center with a substantial proportion of LGBT patients. Capturing sexual orientation and gender identity of LGBT patients will contribute to more respectful care. Nondiscrimination and confidentiality policies are essential to ensure that equal rights are accorded to sexual and gender minorities in clinical settings.

Learning Areas:
Administration, management, leadership
Communication and informatics

Learning Objectives:
1. Identify the benefits of using health information technology and electronic health records to enable the collection of customized demographic fields. 2. Evaluate the outcomes of a patient/community driven process to determine best measures for inclusion on the patient registration form in a community health center. 3. Describe how modality can affect data reporting, including use of audio computer-assisted self-interview and self-administered Patient Reported Outcomes tables. 4. Describe why learning this information is important to help overcome individual health disparities and to learn more about LGBT disparities in general. 5. Discuss why it is important to implement changes in the clinical experience to end lesbian, gay, bisexual and transgender (LGBT) invisibility and disparities in health care.

Keywords: Health Information, Data Collection

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: In my capacity as Co-Chair of The Fenway Institute, I am responsible for ensuring that research and service information is appropriately gathered, recorded, and protected. I work closely with each of the four components proposed for this panel submission.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.

Back to: 4050.0: LGBT Health Emerging Issues