Online Program

Bronx community research review board

Tuesday, November 5, 2013

Paulette Spencer, MPH, The Bronx Health Link, Bronx, NY
Francisco Martin del Campo, BA, The Bronx Health Link, Bronx, NY
Kevin Montiel, B.A., The Bronx Health Link, Queens, NY
Background. The Bronx Community Research Review Board (BxCRRB) is a community-academic partnership between the Einstein-Montefiore Institute for Clinical and Translational Research and the Bronx Health Link (TBHL). As an alternative to individually-initiated de novo community consultations, we have developed a novel structural approach for community-based consultation, review, and education in research planning, implementation and dissemination. Objectives. Our goals are to collaboratively develop (1) an independent volunteer research review board comprising community residents and representatives to test a model of community-based consultation and informed consent by reviewing research proposals; (2) a training curriculum for potential BxCRRB board members regarding the protection of communities and human subjects; (3) evaluations of BxCRRB's success in promoting community trust in and public understanding of academic and clinical research partnerships; and (4) increased community involvement in clinical research. Results. TBHL has recruited and trained two cohorts of community participants in research ethics and process review. Board membership reflects Bronx demographics (i.e., half Latino and one-third African-American). The BxCRRB has reviewed nine research proposals, some from conceptualization to completion. Investigators have reported results and discussed follow-up plans. Board members also participated in NIH-sponsored meetings in Boston and Manhattan, including a national forum on best practices with similar community-based research review committees. The Board has presented at Einstein, begun dialogue with its IRB on mutual collaboration, and is developing a mission statement and by-laws. Columbia's Institute for Clinical and Translational Science has conducted a formal process evaluation, which will be presented in our poster.

Learning Areas:

Communication and informatics
Ethics, professional and legal requirements
Implementation of health education strategies, interventions and programs
Public health or related research

Learning Objectives:
Explain the Bronx Community Research Review Board (BxCRRB) model for community input in health research Describe the process of creating and implementing the BxCRRB model Analyze the outcomes of the BxCRRB’s model for community members and researchers

Keyword(s): Community Benefits, Community Collaboration

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I am the Program Director for the Bronx Health Link and co-investigator for this study. My background is in global public health and political economy. Among my scientific interests has been the history of medical ethics in communities of color and the implications of informed consent on community participation in clinical research.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.