Online Program

“las famosas picardías mexicanas…/ the famous Mexican mischievousness…”: Risk communication amongst Latino families affected by prostate cancer

Tuesday, November 5, 2013

Sally L. Maliski, RN, PhD, FAAN, School of Nursing and Department of Urology, University of California, Los Angeles, Los Angeles, CA
Sarah E. Connor, MPH, CHES, Department of Urology, Health Services Research Group, UCLA, Los Angeles, CA
Elisabeth M. Hicks, MA, School of Nursing, UCLA, Los Angeles, CA
Mark S. Litwin, MD, MPH, Urology and Health Services, David Geffen School of Medicine at UCLA, Los Angeles, CA
Prostate cancer is the most common noncutaneous cancer and second leading cause of death among men in the United States. Men with a first degree relative with prostate cancer are at increased risk. Men from minority backgrounds are especially at risk due to variability in access to preventative services, fragmentation of family systems, and stigma associated with prostate cancer. Including current prostate cancer patients and survivors as “knowledge brokers” within their families is an approach to prevent late stage prostate cancer diagnoses. Our research focused on the disclosure and screening decision making process for Mexican and Mexican-American men and their first degree relatives. We are developing descriptive models of prostate cancer screening, treatment, and diagnosis disclosure decision-making from the perspective of Latino men to form an evidence base for the development of culturally appropriate intervention strategies to facilitate informed and confident decision-making. We used in-depth, individual interviews and a grounded theory approach with 60 participants at baseline and 26 participants in follow up interviews. In our analysis we are exploring risk perception and the context, timing, and patterns of risk communication amongst primary relatives, especially male relatives. We will explain the analytic framework used to track disclosures to primary male relatives and subsequent actions (or non action) taken by the families over time. We will discuss how this descriptive work will inform an intervention model using a family-focused design.

Learning Areas:

Advocacy for health and health education
Communication and informatics
Diversity and culture
Public health or related education
Social and behavioral sciences

Learning Objectives:
Describe analysis techniques used to develop risk communication models used by Latino men to obtain screening for, seek treatment for, and disclose information about prostate cancer to their families. Discuss the role family plays in healthcare decision making and the inclusion of family in the promotion of screening.

Keyword(s): Psychosocial Issues of Cancer, Risk Communication

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I have been the principal investigator on several federally funded grants with the DOD and NIH. My research interests include oncology, Latino health, sexual minority health, nursing, and quality of life. I have enjoyed on ongoing collaboration with Department Urology with which I am currently studying prostate cancer recovery. I use qualitative methods with some mixed methods. I am an Associate Professor and Associate Dean of Academic Affairs in the School of Nursing at UCLA.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.