Successful health care self-advocacy strategies for consumers with spinal cord injury: Qualitative interviews with consumers and profressionals
Learning Areas:Advocacy for health and health education
Chronic disease management and prevention
Other professions or practice related to public health
Planning of health education strategies, interventions, and programs
Public health or related research
Social and behavioral sciences
Describe the main recommendations of consumers for finding and communicating with a primary care doctor, and for navigating the system to get equipment needs met. Explain effective self-advocacy skills from the consumer's perspective, including the importance of social support. Compare the consumer perspective with professionals' advice on how best to self-advocate within the health care delivery system.
Keyword(s): Access to Health Care, Disability
Qualified on the content I am responsible for because: I've been involved with the New England Regional SCI Center since 2000, as Assistant and then Associate Director over the last 5 years. I was Research Director for a CDC-funded project developing an intervention to address secondary conditions for consumers with SCI, including appropriate health care utilization and related qualitative interviews. I have conducted/analyzed a variety of quantitative and qualitative surveys to solicit consumer and provider perspectives for health care access among other research topics.
Any relevant financial relationships? No
I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.