Parenting stress and depression in diverse families with a child newly diagnosed with autism spectrum disorder
Objective: To measure parenting stress and depression among diverse families of children newly diagnosed with ASD.
Methods: Families from an urban inner-city hospital were recruited within a month of their child's diagnosis with ASD to partake in a larger study. 116 parents completed the Parenting Stress Index short form (PSI), the QIDS (Quick Inventory of Depressive Symptomatology), and answered questions regarding demographics and housing stability.
Results: 54% of the sample was non-US born, 71% received public insurance and 20% reported that they were in unstable housing. Immediately after diagnosis, 16% of interviewed parents reported clinically significant levels of parenting stress (PSI &ge 90%ile) and 58% exhibited symptoms of depression (QIDS &ge 5). In univariate logistic regression, parents of children with lower adaptive functioning, based on ABAS composite scores, were significantly more likely to be depressed (p < 0.05); ABAS scores were not significantly associated with increased likelihood of clinically significant levels of parenting stress.
Conclusion: In a diverse low-income immigrant population, the incidence of parenting stress and depression in families of children newly diagnosed with ASD is high. Supporting diverse low-income minority families around an ASD diagnosis requires a multi-faceted service and support approach; especially for families with lower functioning children.
Learning Areas:Assessment of individual and community needs for health education
Describe a unique diverse cohort of families with a child newly diagnosed with Autism Spectrum Disorder Assess parenting stress and depression in diverse families immediately after a new diagnosis of Autism Spectrum Disorder Evaluate the influence of ABAS composite scores on parenting stress and depression
Keyword(s): Children With Special Needs, Depression
Qualified on the content I am responsible for because: I have been working on the Family Navigator Study as a Family Navigator since its inception. I have navigated over 37 low income and diverse families with a child recently diagnosed with an ASD. In June 2013 I graduated from the LEND Program at the Shriver Center in Waltham, MA.Among my scientific interests has been the development of accessible resources for Hispanic immigrants with disabilities and their families; specifically focusing on health, education, and entitlements.
Any relevant financial relationships? No
I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.