Online Program

Providing credible health information for young women and bleeding disorders

Tuesday, November 5, 2013 : 10:50 a.m. - 11:05 a.m.

Patricia Rhynders, PhD, MPH, MCHES, Victory for Women project, National Hemophilia Foundation, Joshua, TX
Cynthia Sayers, BA, National Center on Birth Defects and Developmental Disabilities, Division of Blood Disorders, Centers for Disease Control and Prevention, Atlanta, GA
JoAnn M. Thierry, PhD, National Center on Birth Defects and Developmental Disabilities, Division of Blood Disorders, Centers for Disease Control and Prevention, Atlanta, GA
Background: Bleeding disorders in women are an underestimated public health problem that, if undiagnosed, can diminish quality of life and cause life-threatening complications during menstruation, childbirth, and surgery. Methods: CDC and the National Hemophilia Foundation commissioned an online survey to measure young women's awareness of, knowledge about, and experiences with heavy menstrual bleeding. We sought to determine the preferred messaging strategy (e.g., gain-framed vs. loss-framed messages) for presenting credible health information about bleeding disorders to young women. The survey was conducted on a nationally representative sample of 1,243 women ages 18-25 living in the U.S. Results: Sixty-eight percent of respondents said they would be extremely/very likely to see a healthcare professional if they suspected a bleeding disorder. However, results indicate there is a lack of knowledge about what is a “normal” vs. “not normal” period. Data support that gain-framed messages are more effective than loss-framed messages in encouraging symptomatic women to seek treatment. Findings suggest the most influential messages focus on maintaining typical daily activities during one's period, preserving future fertility, and knowing that effective treatments are available. Conclusions: Lack of information about bleeding disorders is a serious public health problem. Health communications focused on gain-framed statements may encourage symptomatic young women to seek early diagnosis and treatment. These findings and corresponding recommendations align with national health goals set through Healthy People 2020 and with CDC's Health Protection goal for women—working to promote the health, safety, and quality of life of women at every life stage.

Learning Areas:

Planning of health education strategies, interventions, and programs
Public health or related education
Social and behavioral sciences

Learning Objectives:
Define "excessive bleeding" as a public health issue for young women; Differentiate between "gain-framed" and "loss-framed" health promotion messages; Identify influential messages most likely to encourage young women to seek early diagnosis and treatment

Keyword(s): Women's Health, Health Education Strategies

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I am a health educator with experience in program development and health communications. As a consultant with the National Hemophilia Foundation on its cooperative agreement with CDC, one of my major projects has been conception, development, implementation, and reporting for this project.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.