Healthcare providers' perspectives on the impact of genome-wide testing on pediatric clinical practice: Implications for informed consent and result disclosure
Learning Areas:Clinical medicine applied in public health
Other professions or practice related to public health
Planning of health education strategies, interventions, and programs
Social and behavioral sciences
Systems thinking models (conceptual and theoretical models), applications related to public health
Describe perspectives of healthcare providers regarding the use of genome-wide testing in their clinical practice. Evaluate opinions of healthcare providers regarding informed consent and disclosure of results of genome-wide testing. Identify challenges for healthcare providers in providing adequate pre-test informed consent and post-test follow-up for incidental findings and uncertain test results. Discuss potential policies to address challenges in providing adequate informed consent and follow-up. Formulate interventions to improve the communication of genomic information in the context of clinical practice.
Keyword(s): Genetics, Communication
Qualified on the content I am responsible for because: Dr Reiff is Senior Researcher Investigator at UPenn Center for the Integration of Genetic Healthcare Technologies. She has a PhD. in Sociomedical Sciences (Columbia University), a Masterâs in social work and social policy (London School of Economics), and training in anthropology and public health. She specializes in mixed-method research, investigating the cultural contexts of health and medicine, and currently is PI on a study exploring experiences of families having genome-wide testing for Autism Spectrum Disorders.
Any relevant financial relationships? No
I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.