My life, our future: A multi-sector partnership to generate genotype and research data within the hemophilia community
Learning Areas:Implementation of health education strategies, interventions and programs
Planning of health education strategies, interventions, and programs
Public health or related research
Discuss a community partnership to develop a model to address unmet needs within the hemophilia community. Describe stakeholder participation in development of the project goals and processes and in project implementation to provide genotyping services and data for research within the hemophilia community. Demonstrate how the bleeding disorders model applies to other rare disorders.
Keyword(s): Community-Based Partnership, Genetics
Qualified on the content I am responsible for because: I am a public health professional. I am American Thrombosis and Hemostasis Network's Manager of Affiliate Services and serve as Project Manager for the National Hemophilia Program Coordinating Center (NHPCC) funded by Health Resources and Services Administration (HRSA) Maternal Child Health Bureau (MCHB). The NHPCC works with eight regional core centers and 135 affiliated hemophilia treatment centers. I also serve as Chair of the My Life, Our Future Healthcare Provider Education Working Group.
Any relevant financial relationships? No
I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.