A qualitative investigation of burden and HRQoL in female spouse caregivers of HNC patients

BACKGROUND/SIGNIFICANCE: Head and Neck Cancer (HNC) is one of the leading causes of cancer-related morbidity, death, and disfigurement, making their informal family caregivers a vulnerable population. The disease affects predominantly males making their informal spouse caregivers mostly female. Female caregivers are disproportionately affected in comparison to male caregivers. This has been attributed in part due to the fact that females have an inherent ability to empathize with others, thus creating a more shared experience between the patient and caregiver. No studies have qualitatively explored the caregiving impact on female spouses of HNC patients. OBJECTIVE/PURPOSE: To qualitatively explore burden and health-related quality of life in a group of female spouse caregivers of HNC patients over the chemo-radiation period. METHODS: Semi-structured interviews were conducted with eight female spouse caregivers at the middle and conclusion of chemoradiation. Data are currently being analyzed using a thematic analysis approach requiring an iterative process in which codes are developed and continuously refined as analysis progresses. Change in participant responses will be explored across the two time points. RESULTS: Data analysis is currently in progress. Preliminary analyses have demonstrated burden associated with caregiving tasks (e.g., providing medication, preparing meals, transporting/accompanying patient to treatment). Caregiving duties appear to be affecting multiple dimensions of the caregivers' lives. DISCUSSION/CONLUSIONS: Caregivers are a significant resource for patients and the broader health care system, yet female caregivers typically experience the brunt of the disease. More research is needed to develop psychosocial interventions for this unique population of female caregivers.