Online Program

Participatory research findings on measuring the quality of health care delivery for persons with disabilities

Sunday, November 3, 2013

Dennis Heaphy, MEd, MPH, Disability Policy Consortium, Boston, MA
Theodore Chelmow, Ph.D. LMHC, Consumer Quality Initiatives, Roxbury, MA
Monika Mitra, PhD, Lurie Institute for Disability Policy, Heller School of Social Policy and Management, Brandeis University, Waltham, MA
This session will describe the white paper findings on Community-based Participatory Action Research (CPAR). CPAR is being used as a tool to monitor the Dual Eligibles Demonstration in Massachusetts to insure that the delivered care is reflective of the needs and values of the disability community. CPAR is also being used to understand whether Long Term Services and Supports are being delivered in a culturally congruent manner. CPAR methodologies will be detailed as they have impacted the development of population specific quality metrics in the demonstration. The CPAR process will also be reviewed as it has engaged diverse multicultural communities, cross disability concerns and a range of invested stakeholders. Participants will learn The CPAR process and findings can be used to support the development, implementation and monitoring of appropriate health care services. The demonstration impacts over 100,000 individuals between the ages of 21 and 64 with Medicaid and Medicare.

Learning Areas:

Implementation of health education strategies, interventions and programs
Public health or related public policy
Public health or related research

Learning Objectives:
Explain the impact of participatory research on the development of quality metrics for health care delivery for individuals with disabilities. Describe Community-Based Participatory Research (CPAR). Explain why CPAR was chosen and utilized as a research tool. Describe CPAR as influencing grassroot advocacy and state health policy. Describe how learnings from findings will inform future CPAR investigations.

Keyword(s): Disability Policy, Quality

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I am doctor of public policy and the Executive Director of a non profit organization that predominantly engages in Community Based Participatory Action research for both state and federally funded initiatives. As a member of Disablity Advocates Advancing our Health Care Rights, I have worked in partnership with the state of Massachusetts in its development of metrics reflective of the values of the disability community.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.