Online Program

Impact of the independent living philosophy and the recovery model on health care

Tuesday, November 5, 2013

Theodore Chelmow, Ph.D. LMHC, Consumer Quality Initiatives, Roxbury, MA
Dennis Heaphy, MEd, MPH, Disability Policy Consortium, Boston, MA
Monika Mitra, PhD, Lurie Institute for Disability Policy, Heller School of Social Policy and Management, Brandeis University, Waltham, MA
This session will discuss a white paper on the work of Disability Advocates Advancing our Health Care Rights (DAAHR) in Massachusetts. The paper will provide specific examples of how DAAHR's efforts have effectively changed the Dual Eligibles Demonstration in Massachusetts. DAAHR has been working over two years advocating for person-centered policies in the development of the demonstration. The project impacts over 100,000 people with Medicaid and Medicare between the ages of 21 and 64. The population is heterogeneous with 60% having mental health needs and with 20% of the population driving 70% of the cost. The demonstration offers opportunities and challenges as this is the first time medical and long term service and support dollars will be put under the control of managed care organizations at such a large scale. The efforts of DAAHR are critical in the demonstration given the complex needs of people with disabilities that go unmet. Historically Managed Care organizations (MCOs) lack the experience in integrating person-centered care that is driven by Independent Living Philosophy and the Recovery Model. As pointed out by AHRQ and other entities, people with disabilities exist on a thin margin of health. The Behavioral Risk Factor Surveillance System (BRFSS) provides clear evidence of disparity. The session will describe our cross-disability work to address these disparities by educating the state, contracted MCOs and other stakeholders about Independent Living Philosophy and the Recovery model. We will highlight strategies for achieving several significant successes with the goal of educating advocates in other states.

Learning Areas:

Provision of health care to the public

Learning Objectives:
Discuss the impact of the Independent Living Philosophy and the Recovery Model on person-centered care. Define primary components of the Independent Living Philosophy and the Recovery Model. Explain the impact of the two models on health policy. Cite examples of how the Independent Living Philosophy and the Recovery Model are serving to create more person-centered medical homes.

Keyword(s): Disability Policy, Health Care Reform

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I am part of the DAAHR leadership, coauthor of the white paper and have been a presenter at APHA. My work is at the state and federal level and as such I can speak to policy issues impacting people with disabilities.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.