Online Program

Gatekeepers, gateways, or guides: Analyzing the nature & impact of community governance in partnered health research projects

Tuesday, November 5, 2013

Malia Villegas, Ed.D, Policy Research Center, National Congress of American Indians, Washington, DC, DC
Emily White Hat, JD, Policy Research Center, National Congress of American Indians, Washington, DC
John Oetzel, PhD, Department of Management Communicatoin, University of Waikato, Hamilton, New Zealand
Heather Zenone, National Congress of American Indians, Washington, DC
Nina Wallerstein, DrPH, UNM School of Medicine, Department of Family & Community Medicine, UNM Master of Public Health and Center for Participatory Research, Albuquerque, NM
Bonnie Duran, DrPH, School of Public Health and Indigenous Wellness Research Institute SSW, Department of Health Services, Seattle, WA
In this paper, a team of scholars presents analysis focused on exploring the nature of governance and how it impacts outcomes in a range of community-partnered research initiatives, with a goal of developing insights about how governance matters in community-based participatory research (CBPR). Here, governance can include research regulation, research oversight, and responsibility for meaningful research outcomes. This analysis comes out of the NIH-funded Native American Research Centers for Health multi-year (2009-2013), multi-site study, “Research for Improved Health,” on CBPR in partnered projects designed to reduce health disparities. Specifically, we will present mixed-methods analysis developed from a survey of 200 projects employing CBPR approaches identified through a pool of 294 CBPR projects from a search of the RePORTER database in 2009, as well as case studies with seven community-partnered health research initiatives in diverse places and demographic contexts (e.g., urban and rural, tribal and non-tribal, and racially/ethnically diverse). Topics analyzed and discussed include: the relationship between legitimacy and authority in different contexts, distinct perspectives on the role of community research regulation bodies as gatekeepers/gateways/guides, the economics of research oversight and governance, and the link between research governance structures and decision-making processes. The outcome is to provide substance to existing discourses about the impact of community-based research regulation on research outcomes.

Learning Areas:

Diversity and culture

Learning Objectives:
Identify at least three distinct types of community governance functions in research Discuss the assertion that community governance constrains researcher productivity Describe economic considerations facing community partners in establishing research governance processes

Keyword(s): Community-Based Partnership

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I am the co-principal investigator of the grant for which these data were collected and am responsible for overseeing tribal research regulation for the National Congress of American Indians.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.