Online Program

A community-driven national agenda for research equity and impact

Tuesday, November 5, 2013 : 1:30 p.m. - 1:50 p.m.

Elmer Freeman, MSW, PhD(c), Center for Community Health Education Research and Service, Boston, MA
Grace Damio, M.S., CD/N, Director of Research and Service Initiatives, Hispanic Health Council, Hartford, CT
Susan Gust, Partners Three Consulting Company, Minneapolis, MN
Ernest Hopkins, Phoenix Group Foundation, Atlanta, GA
Ogonnaya Newman, MPH, Former Director of Environmental Health, WE ACT for Environmental Justice, New York, NY
Ann-Gel S. Palermo, MPH, DrPH, Harlem Community & Academic Partnership, Inc., New York, NY
Fernando Pineda-Reyes, BS, CREA Results, Wheat Ridge, CO
Alex Pirie, Immigrant Service Providers Group/Health, Somerville, MA
Al Richmond, MSW, North Carolina Institute of Minority Economic Development, Healthy Workplace Initiatives, Durham, NC
Zachary Rowe, BBA, Friends of Parkside, Detroit, MI
Jean Schensul, PhD, Institute for Community Research, Hartford, CT
Raquel Trinidad, Special Service for Groups, Los Angeles, CA
Eric Wat, MA, Special Service for Groups, Los Angeles, CA
Gayle Woodsum, Feeding Laramie Valley, Action Resources International, Laramie, WY
INTRODUCTION: Community engagement in research is essential to understanding and addressing racial, ethnic, linguistic and socioeconomic disparities in health. As more community organizations enter into research partnerships with institutions as well as initiate and conduct research, they need funding and research resources as well as supportive networks for professional development, mentoring and advocacy. APPROACH: The 2nd National Community Partner Forum on Community-Engaged Health Disparities Research was held in December 2012 in Washington DC. Over 100 community partners from 27 states and DC attended; 87% people of color and over 80% involved in federally funded research. The agenda was designed so that community partners could learn and strategize together in preparation for a conversation with academic partners and invited leaders from government, philanthropic and non-profit sectors about ways to equalize community engagement in the research enterprise. RESULTS: Forum participants affirmed that communities and the organizations representing them want a shared, balanced, and equal ownership stake in decision-making about research and the research enterprise at the federal, state, and local levels, and outlined actions needed to accomplish this goal. The Community Network for Research Equity and Impact which has emerged from the forum has since released a report, supported workgroups, sponsored webinars and met with key stakeholders. DISCUSSION: After presenting the Network's agenda for research equity and impact, progress and plans, we will engage participants in a dialogue around their feedback and suggested strategies for implementing the agenda. We will also discuss opportunities for their continued involvement.

Learning Areas:

Diversity and culture
Ethics, professional and legal requirements
Public health or related laws, regulations, standards, or guidelines
Public health or related organizational policy, standards, or other guidelines
Public health or related research

Learning Objectives:
Explain the development of the Community Network for Research Equity and Impact Identify actions needed on the part of community-based organizations, research institutions and funding agencies to support authentic community-based participatory research Explain why investing in research infrastructure and capacity building in communities is a strategy for achieving health equity

Keyword(s): Policy/Policy Development, Participatory Research

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: Al Richmond has 25 years of experience in public health. He is a founding member of the Community Based Public Health Caucus. He is a national leader on developing and sustaining effective partnerships between community and academic partners. In 2010 Al was elected president of the National Community Based Organization Network. In 2011 he became the first community co-chair of the Community Engagement Core - Key Functions Committee of the Clinical Translational Science (CTSA) Award.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.