An American sign language consent film
Wednesday, November 6, 2013
: 12:42 p.m. - 12:46 p.m.
Abstract: The National Center for Deaf Health Research in Rochester, NY, a Centers for Disease Control and Prevention-funded Prevention Research Center, recently implemented a randomized controlled trial of a healthy life style program for overweight and obese Deaf adults. In order to be culturally and linguistically appropriate, the informed consent written English language document was translated into American Sign Language (ASL). A filmed, scripted scenario was then created in which Deaf actors portray researchers and participants discussing the informed consent process. The conversational nature of the scenario reflects deaf community cultural norms and is an effective way of conveying information in ASL. The translation group and the filming team included both members of the research team and members of the Deaf community, in accordance with community based participatory research methods. Research participants viewed the film and then met with a sign-fluent researcher to ask questions and confirm their understanding of the consent and sign a one-page English consent document. To our knowledge, this is the first time an informed consent form has been translated into a dialogic ASL scenario targeted to deaf research participants. Deaf participants responded well to the consent process. For researchers who wish to include deaf participants, providing an option to view informed consent in their native language is in line with best practices.
Diversity and culture
Ethics, professional and legal requirements
Public health or related research
Compare the consent process for users of American Sign Language when media is used to present the consent content in user’s native language.
Identify the differences in a consent presented in American Sign Language using novella-style approach compared with consent presented in written English.
Keyword(s): Research Ethics, Deaf
Presenting author's disclosure statement:
Qualified on the content I am responsible for because: I have worked on numerous research projects at the University of Rochester in my 12 years here. I have been involved in multiple filming projects in American Sign Language meant for deaf audiences and am currently on a grant project that seeks to determine the effects of using ASL films for consent for deaf participants. I've also helped create educational films and materials for the CDC-funded Prevention Research Centerâs National Center for Deaf Health Research.
Any relevant financial relationships? No
I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines,
and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed
in my presentation.