Online Program

Public use of patient data for public health

Monday, November 4, 2013 : 12:50 p.m. - 1:10 p.m.

Marc A. Rodwin, J.D., Ph.D, Suffolk University Law School, Boston, MA
The development of electronic medical records creates the potential to tap patient data for the creation of aggregate databases that have great potential to promote public health. Today, however, this data is unavailable because hospitals, data managers and commercial interests limit public use to exploit the data for their own profit and in part because of concerns over privacy. Private markets for such data fracture the data pool and reduce its value for public health purposes. This presentation analyzes the legal and economic obstacles to liberating data for public health purposes. It proposes an agenda for reform to promote public health uses of data while protecting privacy and allowing, where appropriate, commercial development of databases.

Learning Areas:

Public health or related public policy
Public health or related research

Learning Objectives:
Explain the key legal issues that determine how patient data can be used. Analyze the key policy actors in patient data. Evaluate the consequences of health data policy choices on public health and healthcare policy

Keyword(s): Community Building, Data Collection

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I am an expert in the center and have worked in this field for several years. Additionally, I have a Ph.D. from Brandeis University in Health and Social Welfare Policy and a J.D. from the University of Virginia Law School. I have published a number of peer reviewed articles on the topic of my presentation, and contributed substantially to the advancement of the science in this area.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.