Continuing Challenges to Patient, Family, Providers and Systems in Transitioning Youth with Special Health Care Needs to Adult Focused Care
Learning Areas:Provision of health care to the public
Public health or related laws, regulations, standards, or guidelines
Public health or related public policy
Public health or related research
Describe at least two challenges to youth with special health care needs as they transition across health systems.
Qualified on the content I am responsible for because: I completed fellowships in the Robert Wood Johnson Clinical Scholars Program and the Phillip R. Lee Institute for Health Policy Studies. I am PI for two transition programs with cystic fibrosis and type I diabetes. Along with my survey work, I have performed several qualitative studies of youth, parents and providers on barriers and facilitators to transitioning. I work with numerous community agencies to advance the transition needs for those with developmental and physical disabilities
Any relevant financial relationships? No
I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.