Barriers faced by parents of hispanic children with autism: Lessons learned from south Texas focus groups

Rates of autism have been increasing in recent years. The CDC currently estimates that autism affects 1 in 88 American children. However, the prevalence of autism among Hispanic children is estimated to be much lower than the national average. Furthermore, studies have demonstrated that Hispanic children are diagnosed with autism at a later age than non-Hispanic white children. Children with autism who receive early interventions are more likely to have positive outcomes and their parents develop a better understanding of healthcare services access. Our study is designed to 1) examine specific barriers to the early diagnosis of Hispanic children and 2) to ascertain if these barriers later affect the child's ability to receive proper interventions.

In March through May, 2012 four focus groups were conducted with a total of 35 parents of children with autism in South Texas. A thirty-five item Family Needs Survey (FNS) was administered at the start of each focus group. Through a 90-minute focus group discussion parents were given an opportunity to expand on FNS questions along with emphasizing needs omitted from the survey. The focus groups transcripts identified many common barriers. We will present recurring themes identified through qualitative analysis in an effort to pinpoint the exact barriers faced by parents of Hispanic children diagnosed with autism in South Texas.

Recognition of these barriers may lead to greater autism ascertainment and early intervention, which research has shown increases quality of life and well-being for children and their families.