141st APHA Annual Meeting

In This section

289224
An application of the behavior conditioning model to the case study of a residential facility for individuals with developmental disabilities

Tuesday, November 5, 2013

Dana Hart, PhD , Department of Health Care Administration, Utica College, Utica, NY
Gail Young, PhD , Health Care Administration, Utica College, Cooper City, FL
Mary Wilhelm-Chapin, MS , Office of Online and Extended Studies, Utica College, Utica, NY
Cheryl Sandford, PhD , Department of Education, Utica College, Utica College, NY
In the past, individuals with Down syndrome (DS) were institutionalized, had an expected lifespan of 25, or lived in communities where autonomy or independent living was not allowed or promoted. Today, individuals with developmental disabilities, particularly those with DS, have greater opportunities, including access to communities across the country that foster independent living. This foundational study explored perceptions of residents and families served in a Northern residential community for individuals with developmental disabilities (primarily DS) using the Behavior Conditioning Model (BCM) (Hart, 2013). The model emerged from a series of literature analyses conducted to understand the complex variables and interrelatedness of behavior theories and models. One-on-one semi-structured interviews and focus groups were conducted with the four groups of stakeholders (N=128) within the community regarding perceptions of organizational structure, service delivery processes, and support expectations. Data were coded and analyzed with the help of NVivo 10 and the Delphi method. Preliminary findings showed consistent themes and evolving patterns similar to the construct domains of BCM. An organizational inquiry model was developed for the community. Stakeholder experiences and the new model served as a process guide to understand the essence of the community fostering life with meaning for residents. Individual stories of the four stakeholder groups predominantly minimized resident disability and maximized experiences of an integrated community with a shared vision. Future research should focus on the application and interpretation of the BCM constructs which can lead to replication of the model and inquiry process in other non-profit organizations.

Learning Areas:
Public health or related research
Social and behavioral sciences
Systems thinking models (conceptual and theoretical models), applications related to public health

Learning Objectives:
Describe the key perceptions of families, staff, senior leadership and residents with Down syndrome (DS) at a Northern residential community for individuals with developmental disabilities (primarily DS). Discuss the BCM (Hart, 2013) adapted for the residential community. Identify core elements that effectively enable residents with developmental disabilities (primarily DS) within communities that foster independent living. Discuss implications for improvement and policy development for the community supporting individuals with developmental disabilities (primarily DS).

Keywords: Disability Studies, Research

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I have been the principal investigator of multiple funded grants. Based on a 25 year foundation of ongoing research and teachings, I have particular interest in behavioral sciences and a vocation in organizational development to effect positive change. I have served as Director of the Leadership institute and have developed a Behavior conditioning model.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.