Computer-based training for improving caregiver support of preventive health screenings in adults with intellectual disabilities

People with intellectual disability frequently rely on caregivers for support in maintaining healthy behaviors; affecting change in these behaviors often requires a multimodal ecological approach. As part of a state-wide initiative to establish effective health supports and increase preventive screening for adults with intellectual disability, the Massachusetts Department of Developmental Services used a train-the-trainer model to train staff at service provider agencies on preventive health screenings. Post-training evaluations indicated poor performance of this model due to inconsistencies in training resulting in a lack of knowledge penetration among staff trained outside of the initial training. Instead, an individual-level, content-specific training was needed that could be customized at the state level and targeted directly towards caregivers, with the capacity to be accessed easily and shared broadly. An alternative comprehensive intervention was designed to directly target caregiver education and organizational policies to ensure support of preventive health screenings. A computer-based training was created, piloted, and implemented statewide to teach caregivers specific advocacy skills, effective communication with health care providers, and support strategies for reducing anxiety and improving comfort of adults when receiving health screenings. Organizational polices were targeted through increased awareness and promotion of preventive health screening recommendations. Affordable, commercially available software allowed efficient customization to state agency needs. Satisfaction surveys indicate that participants found the training beneficial (88%), interesting (100%), and of high value (83%), and knowledge gain was demonstrated through pre-post testing. This method may have applicability in other populations who rely on caregivers for support with health needs and communication.