Abstract
Informing, Respecting, and Caring for Cancer Patients: Identifying and Delivering the Essential Elements of Patient-Centered Cancer Care
Rebekkah Schear, MIA
LIVESTRONG Foundation, Austin, TX
2015 APHA Annual Meeting & Expo (Oct. 31 - Nov. 4, 2015)
In the United States, nearly 14 million people have had cancer and more than 1.6 million new cases are diagnosed annually. Yet it is acknowledged that no institution to date has successfully implemented a comprehensive model of patient-centered cancer care (PCCC). While the cancer community knows what PCCC means, we have an unprecedented opportunity to determine how to deliver it in a way that results in the patient feeling informed, respected and cared for. In 2013-2014, LIVESTRONG Foundation conducted research to develop a specific list of elements of patient-centered cancer care. Methods included an extensive literature review and iterative process with experts to combine elements that were thematically similar or interdependent and check elements against the six main components of the IOM’s framework for high-quality cancer care. The resulting tool is a collection of 23 building blocks which can be used to guide delivery of PCCC. In June 2014, we convened a Symposium with 83 stakeholders to discuss how the elements should be prioritized and implemented across diverse care settings. The agenda included presentations and discussions with experts, patients, and caregivers and human-centered design activities focused on conceptualizing models of PCCC. Results point to several high-priority elements of PCCC such as continually assessing needs, preferences, and values of the patient so they serve as the foundation of care decisions; and coordinating and integrating care across multiple disciplines within and outside of oncology. Results also offer innovative strategies to help cancer care settings move towards being more patient centered right now.
Chronic disease management and prevention Planning of health education strategies, interventions, and programs Program planning Provision of health care to the public Public health or related organizational policy, standards, or other guidelines Public health or related public policy