Session

Research that Empowers: National Examples of Community and Stakeholder-Engaged Designs that Address Disparities

Mary Jane Alexander, PhD, Statistics and Services Research Division, Nathan Kline Institute, Orangeburg, NY

2015 APHA Annual Meeting & Expo (Oct. 31 - Nov. 4, 2015)

Abstract

Understanding the Medicaid Expansion's Potential Under the Affordable Care Act to Address the Unmet Behavioral Health Treatment Needs of Ethnic Minority Populations

Lonnie Snowden, PhD
University of California, Berkeley, Berkeley, CA

2015 APHA Annual Meeting & Expo (Oct. 31 - Nov. 4, 2015)

Background: Medicaid was expanded under the Affordable Care Act to provide insurance coverage for everyone with incomes below 138% of the Federal Poverty Line; behavioral health coverage is included as an essential benefit with behavioral health-physical health parity. Yet more than 20 states have rejected Medicaid expansion. This presentation will (i) document the consequences of the failure to expand Medicaid on ethnic minority populations' unmet need for treatment; (ii) project minority-white disparity reduction if Medicaid expansion were universally accepted and (iii) discuss expert advisor and policy analysis input in shaping questions and disseminating information.

Methods: Estimates from National Survey of Drug Use and Health supplemented with other data sources. Advisor meetings to refine questions and formulate dissemination strategy.

Findings: African Americans are concentrated in non-expansion accepting states, and disparities would decline appreciably with full expansion. Latinos and Asian Americans would benefit more if means were found to bring coverage to undocumented immigrants.

Implications: Expanding insurance coverage can help reduce ethnic minority's noteworthy unmet need for behavioral healthcare treatment.

Administration, management, leadership Chronic disease management and prevention Diversity and culture Provision of health care to the public Public health or related public policy Systems thinking models (conceptual and theoretical models), applications related to public health

Abstract

Parent Engagement in a Comparative Effectiveness Study Examining Parent Activation and Mental Health Services for Latino Children

Monica Perez Jolles, PhD1 and Kathleen Thomas, PhD, MPH2
(1)University of Southern California, Los Angeles, CA, (2)UNC Eshelman School of Pharmacy, Chapel Hill, NC

2015 APHA Annual Meeting & Expo (Oct. 31 - Nov. 4, 2015)

Purpose: This research’s goal is to improve the mental health care of Latino children. This presentation describes changes to study protocol and implementation as result of parent engagement in the research process.

Study Design:  Researchers established a mentor parent group to discuss study goals, recruitment, data collection protocols, study measures and interpretation of findings to inform the protocol design of a randomized controlled trial testing the effectiveness of a psycho-educational intervention designed to teach Latino mothers activation skills. Mentor parent group discussions are held quarterly throughout the 3-year study period.

Findings: Feedback from the mentor parent group resulted in three important changes. First, mothers urged us to include school outcome measures because children’s school experiences often motivate mental health service use. During study implementation, school measure showed positive change even after three months. Second, mothers explained that many parents new to the health care system will be less ready to understand and apply activation strategies. As a result, two measures of previous experience with the mental health system were added. A quarter of mothers used mental health services previously. Last, mothers asked us to be clear that parents were welcome to continue participating even if they missed a group session or their child stopped receiving services. This has contributed to a high study retention rate (88% with completed group sessions).

Conclusions: The inclusion of parent voices in the design and development of this research increased the relevance and applicability of findings for vulnerable populations and in other settings such as the school system.

Social and behavioral sciences

Abstract

Mental Health Impact Assessment in Chicago:Using Community Engagement to Create Health Equity

Tiffany McDowell, PhD and Nataka Moore, PsyD
Adler University, Chicago, IL

2015 APHA Annual Meeting & Expo (Oct. 31 - Nov. 4, 2015)

Background: Mental Health Impact Assessment (MHIA) is a recently developed tool for developing socially just policies and initiatives using methods that are transparent to stakeholders and engage them in planning. MHIAs was adapted from Health Impact Assessments and are designed to assess proposed policies and initiatives for their impact on health equity. The aim is to support a balance  between securing the greatest health gain for the population as a whole, and protecting and promoting the health of marginalized groups. This allows for culturally resonant content to be infused within each step of the policy assessment. 

This presentation uses a Chicago-based example to describe the MHIA process and its community engagement approach. Strategies for engaging and sustaining community input will be offered that demonstrate the importance of integrating a community understanding of the social construction of well-being into public policy.

Methods:Adler University conducted a MHIA on an Equal Employment Opportunity Commission 'policy guidance' addressing the use of arrest records in decisions to hire staff. The project team used a mixed-methods approach to assess potential mental health impacts of this new policy on a low-income, African American community in Chicago. 

Findings: Community input  informed policy recommmendations and influenced the process of monitoring of future physical and mental health outcomes.

Implications: Informed community involvement  provides a natural opportunity for advocacy when it is applied towards the evaluation of policies and public decisions that impact their lives

Social and behavioral sciences Systems thinking models (conceptual and theoretical models), applications related to public health

Abstract

A Linguistically and Culturally Specific Web-based Deaf Depression Screener: Validity and Reliability

Marjorie F. Goldstein, PhD, MPH, CHES1, Elizabeth Eckhardt, LCSW, PhD2, Patrice Creamer, MSW3 and Roberta S. Berry, MFA3
(1)1199SEIU Training and Employment Funds, New York, NY, (2)Social Sciences Innovations Corp, New York, NY, (3)Deaf Research Projects, New York, NY

2015 APHA Annual Meeting & Expo (Oct. 31 - Nov. 4, 2015)

Background: Screening, treatment and referral for depression has become standard in primary care. Many deaf persons cannot be screened using written instruments due to cultural and linguistic differences in their expression of depressive symptoms and low reading levels. While published reports suggest that deaf individuals experience depression more frequently than do hearing persons, deaf individuals may be less likely to be diagnosed and treated due to lack of a valid and reliable screening measure in American Sign Language (ASL).

Objective: Develop and test a web-based, self-administered, culturally and linguistically specific Deaf Depression Screener (DDS), keyed to DSM criteria, in ASL for deaf individuals.

Method: A translation team approach to creating the DDS included interviewing a signing psychiatrist and a mental health interpreter, and conducting focus groups for clarity of language and usability of the prototype screener.

Results: Thus far 272 Deaf persons have recruited. Current results on validity were obtained by comparing the DDS to remote assessment by a signing mental health clinician. Both DDS and mental health clinician used DSM criteria to determine the presence or absence of probable depression. Sensitivity is estimated at 85%; specificity at 70%.   Symptoms were summed and a Pearson correlation coefficient of .85 between the scores from the first and second test administrations indicates good test-retest reliability.

Conclusion: The DDS shows acceptable levels of validity and reliability. It will allow for patient privacy and cultural specificity while meeting the need for screening for depression, the most common mental health disorder seen in primary care.

Clinical medicine applied in public health Diversity and culture Social and behavioral sciences