Online Program

Aging and intellectual and developmental disabilities: A case study in cross systems collaboration

Tuesday, November 3, 2015

Sara Molina-Robinson, ChildLink, Public Health Management Corporation, Philadelphia, PA
Stephen Davis, MHS, Social Services-PersonLink, Public Health Management Corporation, philadelphia, PA
The population of aging individuals with intellectual and developmental disabilities (IDD) is expanding at rates equal to the wider aging population. Differences in the lifespans of individuals with IDD reaching later life and old age post deinstitutionalization have illuminated the incongruence between the long term care (LTC) and IDD systems, created competition between systems for human resources, exposed inadequacies in policies promoting healthy aging for adults with IDD, and revealed inadequate service models that prioritize the identification of age related concerns for the IDD population prior to a health crisis. Using Bronfenbrenner’s ecological systems theory an instrumental case study was conducted to explore the process of support coordination across the LTC and IDD systems for individuals with IDD experiencing age related health concerns. The Centers for Medicaid and Medicare have established the role of support coordinator as the benchmark in coordinating services for individuals receiving home and community based service waivers. The findings of the study illuminate three primary themes necessary for support coordination: systems collaboration, lived experience, and early aging onset. The study included development of a tool that assesses the age related needs of individuals with IDD beginning at age 40, clarifications of best practices to bridge the gap between the LTC and IDD systems, and the establishment of collaborative relationships with public health clinics offering specialized services to the IDD population with a focus on health promotion and healthy aging practices. These findings have implications for social change in public policy affecting the LTC and IDD systems.

Learning Areas:

Administer health education strategies, interventions and programs
Administration, management, leadership
Other professions or practice related to public health
Program planning
Systems thinking models (conceptual and theoretical models), applications related to public health

Learning Objectives:
Identify components of healthy ageing for individuals with Intellectual and developmental disabilities. Compare structure of long-term care versus Intellectual disabilities systems Design methods of cross system collaboration

Keyword(s): Aging, Underserved Populations

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I have been a professional in the developmental disabilities field for 15 years earned my MA degree in Human Services and I am currently a candidate for my PhD in human services with competencies in qualitative research including case studies, phenomenological and ethnographic research. Among my research interests has been systems approach to intellectual and developmental disabilities, and the diffusion of innovative models of care for individuals with developmental disabilities.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.