Beyond the camp crier: Tribal data dissemination using video-teleconference technology
In 2010, a partnership between the National Institutes of Health Clinical Center and a northern plains reservation was initiated to study suicide risk factors among reservation-based youth. In 2011, an all-Native American team used a web-based questionnaire to collect data (N= 288). Youth were asked about sensitive topics including childhood abuse, exposure to violence, and suicide.
Methods: In 2013, the study team began an eight-month process to disseminate findings to the community. Using video-teleconference (VTC) technology the team held biweekly meetings that allowed community-based partners to learn about and engage in interactive discussions of the data. The Primary Investigator also visited the community for face-to-face consultations. The purpose of this data-sharing phase was to return findings as outlined in a tribal resolution and preliminary meetings.
Results: Thorough examination of the data provided community members deeper understanding of the data, which served as a vehicle to tell the story of challenges faced by the youth. It also allowed the tribal advisory group to make data-informed decisions to launch the next phase of the partnership – planning an intervention to address trauma and abuse.
Conclusion: Effective approaches for tribal data dissemination are needed. Teaching the community about the data, and how it can be used, is a strategy that may result in long-term change.
Learning Areas:Diversity and culture
Planning of health education strategies, interventions, and programs
Public health or related nursing
Describe the process of tribal data dissemination Discuss tribal data-informed decision-making points and lessons learned from this process
Keyword(s): Native Americans, Community-Based Partnership & Collaboration
Qualified on the content I am responsible for because: I was the principal investigator of the collaborative study and have been the lead on this project for over five years now. Among my research interests is the development of culturally appropriate interventions strategies for high-risk reservation communities using community-based participatory research principles.
Any relevant financial relationships? No
I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.