Online Program

Community perspectives on biobanking: A qualitative study among Mexican-origin community members living in three Texas cities

Tuesday, November 3, 2015

Natalia Heredia, MPH, Center for Health Promotion and Prevention Research, University of Texas Health Science Center at Houston, Houston, TX
Sarah Krasny, BA, BS, Baylor College of Medicine, Houston, TX
Belinda M. Reininger, DrPH, Department of Health Promotion & Behavioral Sciences, UTHealth School of Public Health in Brownsville, Brownsville, TX
Larkin Strong, PhD, MPH, Health Disparities Research, University of Texas MD Anderson Cancer Center, Houston, TX
Maria E. Fernandez, PhD, Health Promotion and Behavioral Sciences, University of Texas Health Science Center at Houston, School of Public Health, Houston, TX
Laura Von Hatten, MPH, The University of Texas School of Public Health, Dallas Regional Campus, Dallas, TX
Lorna H. McNeill, PhD, MPH, Department of Health Disparities Research, The University of Texas MD Anderson Cancer Center, Houston, TX
Lynne Nguyen, MPH, Center for Community-Engaged Translational Research, Dept of Health Disparities Rsch, MD Anderson Cancer Center, Houston, TX
Population-based biobanks are important for identifying the causes and mechanisms of diseases and can contribute to more accurate diagnosis, treatment, and prevention. The usefulness of biobanks depends on the donation of specimens from individuals of diverse racial and ethnic communities; however, only a small pecentage of current participants are Hispanics/Latinos. We present the results of a qualitative study to assess biobanking knowledge and attitudes of Mexican-origin community members living in three Texas cities, as well as their opinions on barriers and facilitators to participation. We conducted 15 focus groups, 8 in Spanish and 7 in English, with a total of 128 individuals.  We transcribed the recorded data, and coded and analyzed the trasncripts using Atlas.ti v. 7.0. The majority of participants reported that they had never heard of biobanking and they were confused about what specimens would be collected. Most participants expressed a willingness to participate in biobanking to benefit society, family members, and science, especially because they felt that donation did not present a major risk to themselves. However, participants reported that they needed to understand the details of participation, such as how long speciments would be stored, before they would agree to donate their biospecimens. Participants expressed a need for education in their community about the societal benefits that can emerge from biobanking. These results can be used to delevop appropriate educational materials and strategies to increase biobanking participation in this community.

Learning Areas:

Assessment of individual and community needs for health education
Diversity and culture

Learning Objectives:
Explain the results of a qualitative study of Mexican-American community member views on biobanking and biospecimen donation.

Keyword(s): Research, Latinos

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I am a research coordinator on a cancer prevention and control project focused on Latinos, as well as a coordinator of other federally funded grants. I am a PhD student in Health Promotion and Behavioral Sciences and my scientific interests are on community projects among Latinos, and cancer prevention and control.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.