2015 APHA Annual Meeting & Expo

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Recorded Annual Meeting Presentations (RAMP) are now available for purchase.
Only $90 for presenters, $140 for registered attendees and $200 for non-attendees.

Online Program

325764
Informing, Respecting, and Caring for Cancer Patients: Identifying and Delivering the Essential Elements of Patient-Centered Cancer Care


Monday, November 2, 2015

Rebekkah Schear, MIA, Mission, LIVESTRONG Foundation, Austin, TX
In the United States, nearly 14 million people have had cancer and more than 1.6 million new cases are diagnosed annually. Yet it is acknowledged that no institution to date has successfully implemented a comprehensive model of patient-centered cancer care (PCCC). While the cancer community knows what PCCC means, we have an unprecedented opportunity to determine how to deliver it in a way that results in the patient feeling informed, respected and cared for. In 2013-2014, LIVESTRONG Foundation conducted research to develop a specific list of elements of patient-centered cancer care. Methods included an extensive literature review and iterative process with experts to combine elements that were thematically similar or interdependent and check elements against the six main components of the IOM’s framework for high-quality cancer care. The resulting tool is a collection of 23 building blocks which can be used to guide delivery of PCCC. In June 2014, we convened a Symposium with 83 stakeholders to discuss how the elements should be prioritized and implemented across diverse care settings. The agenda included presentations and discussions with experts, patients, and caregivers and human-centered design activities focused on conceptualizing models of PCCC. Results point to several high-priority elements of PCCC such as continually assessing needs, preferences, and values of the patient so they serve as the foundation of care decisions; and coordinating and integrating care across multiple disciplines within and outside of oncology. Results also offer innovative strategies to help cancer care settings move towards being more patient centered right now.

Learning Areas:

Chronic disease management and prevention
Planning of health education strategies, interventions, and programs
Program planning
Provision of health care to the public
Public health or related organizational policy, standards, or other guidelines
Public health or related public policy

Learning Objectives:
Describe the current context for delivery of patient-centered care, as it pertains to cancer care specifically. Discuss the process used to determine a list of essential elements of patient-centered cancer care and explain the 23 Elements and their value to cancer care providers. Demonstrate opportunities for how the Elements might be incorporated into current and new models of cancer care delivery to improve patient-centeredness.

Keyword(s): Cancer, Patient-Centered Care

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I have led the Foundation's efforts to research existing models of patient-centered care and patient-centered cancer care (PCCC), as well as a co-principal in developing our model of patient-centered cancer care and the concepts and constructs that underlie it. I led planning and implementation of a program in 2014 to engage key stakeholders across the nation in collaborating with us to determine how to deliver the elements of PCCC.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.

Back to: 3300.0: Demographic and Patient Factors in Cancer Screening, Treatment, and Survivorship