Effect of health literacy on intentions to donate to a biobank among diverse women
We conducted a three-arm randomized experiment to analyze how model of consent affected biobank donation intentions among 281 women (age ≥35). We developed plain language brochures providing supplemental consent information for a biobank based on three models of consent: notice (i.e., participants notified that their biospecimens may be used in future research); broad (i.e., participants give blanket permission for biospecimens to be used in future research); and study-specific (i.e., participants give consent for each future research study). Intention to donate was assessed on a four-point Likert scale. Health literacy was assessed using the Rapid Estimate of Adult Literacy in Medicine-Revised. The association of health literacy with intentions to donate was analyzed using chi-squared test.
The majority of participants were Black (59%) and had household incomes of less than $35,000 (69%); mean age was 54 years. For the notice model, 40% “definitely” intended to participate, compared with 42% for the broad model and 59% for the study-specific model. Participants with limited health literacy were significantly less likely to definitely intend to donate with the study-specific model (p=0.03). Model preference did not vary by level of health literacy.
Health literacy affected intention to donate to a biobank based on one model of consent. Educational interventions aimed at improving comprehension of consent information may also affect intentions to donate.
Learning Areas:Public health or related public policy
Discuss how health literacy is related to individuals’ intentions to donate to a biobank. Describe differences in intentions to donate to a biobank based on three models of consent.
Keyword(s): Health Literacy, Health Disparities/Inequities
Qualified on the content I am responsible for because: I have a doctoral degree in public health and have conducted research in the areas of health literacy and public health genomics for more than 10 years. I am principal or co-investigator on federally funded grants on this topic.
Any relevant financial relationships? No
I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.