Online Program

Academic and Community Partnerships to Address Disparities in Autism Diagnosis

Tuesday, November 3, 2015

Katrina Kubicek, PhD, Division of Research on Children, Youth and Families, Children's Hospital Los Angeles, Los Angeles, CA
Marisela Robles, MS, Office of Community Engagement, Southern California Clinical and Translational Science Institute, University of Southern California, Los Angeles, CA
Kathryn Smith, RN, DrPH, University Center for Excellence in Developmental Disabilities Children's Hospital Los Angeles, University of Southern California, Los Angeles, CA
Michele D. Kipke, PhD, Community, Health Outcomes, and Intervention Research Program, The Saban Research Institute, Children's Hospital Los Angeles, Los Angeles, CA
Background: Children of color receive an autism diagnosis later than White/Caucasian children.  Our prior research explored this issue and identified three factors contributing to this disparity: 1) parent/provider knowledge; 2) challenges navigating complicated service systems; and 3) limited parental advocacy skills.  Methods: A partnership with a pediatric hospital, a university research institute and community service providers was developed to address these needs.  We took on a data-and community-driven process to adapt an intervention that can be conducted in community settings. Working groups comprised of parents, providers and promotoras (Latina community health workers) were convened to develop content, approaches and activities for a community-based intervention.  A total of nine different community-based organizations participated in this process alongside the academic/clinical partners.  Results: The resulting curriculum was developed in full collaboration with this group. The curriculum was designed specifically for Latino parents and, with this in mind, culturally appropriate examples, terms and “dichos” were included to ensure cultural relevancy. The resulting 6-lesson curriculum has been piloted with promotoras and is currently being implemented in community settings. Conclusions: Community and academic partnerships are integral to the design and implementation of successful community-based interventions.  Such partnerships ensure both local and scientific expertise inform the development of the intervention. In order to have a successful result, the partnership should be approached with the most important ingredients for a successful collaboration including respect, trust and accountability. This success of this partnership provides an example for those hoping to develop culturally-relevant and commuity-driven interventions through partnering with a community or academic institution.

Learning Areas:

Advocacy for health and health education
Diversity and culture
Program planning

Learning Objectives:
Explain integral components of successful collaborations Design a community-based approach to addressing pressing health issues

Keyword(s): Children With Special Needs, Community-Based Partnership & Collaboration

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I designed the research protocol for this study and provided oversight to the overall project.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.