Black Women's Perceptions about Uterine Fibroids
Background : Black women are at the greatest risk of uterine fibroids in the US. Guided by the Theory of Planned Behavior, the purpose of this study was to assess the norms, beliefs, knowledge and attitudes of Black women with uterine fibroids have about their condition, to explore their decisional regret regarding treatment, and its effect on quality of life. Methods: A qualitative focus group methodology was applied. Sample were all Black women who have or had uterine fibroids before menapause. Women were recruited at local Houston churches. Results: Women in this sample had generally positive perceptions about health professionals, expressing trust in their doctors to help them make good decisions. Women relied also on their mother for advice with treatment. Women concerned with fertility tended to do the most research and know all treatment options, compared to those who sought information due to pain alone. Women who chose treatment based on fertility had more shared decision making, compared to women whose decision was based on pain. Overall, women in this study had little regret regarding their treatment choices. Conclusion: Although they expressed trust in their physicians, the women felt the medical community is not concerned about fibroids due to their race and gender. Participants sought education through their physician and the internet, but found neither to be helpful, in particular with stigma. A positive attitude, belief and norms regarding having fibroids can lead to more proactive actions, including having shared decision making and searching for education on treatment options.
Public health or related research
Describe the role of health professionals with education about uterine fibroids and its treatment options among Black women in this study.
Compare the different perceptions among African American women with uterine fibroids who had fertility concerns and those who had pain concerns.
Keyword(s): Behavioral Research, Reproductive Health
Presenting author's disclosure statement:
Qualified on the content I am responsible for because: I have a Master's Degree in Public Health with four years of experience working in diverse community settings that focus on sexual and reproductive health. I also possess a DrPh in Community Health with a minor in Behavioral Health and Health Policy. As a private investigator on reproductive health subjects (PID, uterine fibroids, and HIV pregnancies), I developed strong supervisory and evaluation skills.
Any relevant financial relationships? No
I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines,
and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed
in my presentation.