Pathways to Potentially Preventable Hospitalizations for Diabetes and Heart Failure: Patient Perspectives
Study Design: English-speaking individuals with a PPH for HF or DM (n=90) at the largest hospital in Hawai‘i completed an in-person interview that included open-ended questions on patents’ perspectives of the precipitating factors to their PPH. Using the framework approach, two independent coders identified pathways to preventable hospitalizations, including the patients’ identified reason for the acute problem and significant precipitating background factors.
Results: Seventy-two percent of respondents were under 65 years and 30% were female; 90% had health insurance. More than half (66%) had previously been hospitalized for the same problem. Patients identified seven types of reasons for the acute issue leading to hospitalizations: medication issues (e.g., did not refill medication—57% of respondents); lifestyle and self-care challenges (e.g., drank too much water—47%); issues in the clinical encounter (e.g., logistical problems getting to the clinic—44%); priorities/attitude (e.g., other concerns are more urgent than managing chronic illness—19%); readmission specific challenges (e.g., they believed they were discharged too early—24%) and did not know had illness(5%). Patients’ stories of the precipitating background factors were critical to understanding why patients had these problems that lead to their hospitalizations and included six themes: extreme social vulnerability (homeless, poverty, limited social support—54%); health care system interaction issues (e.g., poor coordination with providers—44%); lack of knowledge (42%); behavioral health issues (e.g., substance abuse, mental health problems—36%); denial of illness (27%); and practical problems(e.g., just forgot, too busy—6%).
Conclusions: In a young, predominately insured population, factors well outside the traditional purview of the hospital or even clinical medicine were critical precipitating factors for many PPH. This information is unlikely to show up in administrative data and may not be discussed in the clinical encounter, but is critical in determining which “potentially preventable hospitalizations” are truly preventable and by what part of our health and social system (i.e., where PPH-targeted interventions should most fruitfully focus). Patient perspectives were vital to understanding this issue. Innovative partnerships or policies should be developed to address these issues, including linkages to social services and behavioral health.
Learning Areas:Chronic disease management and prevention
Diversity and culture
Provision of health care to the public
Systems thinking models (conceptual and theoretical models), applications related to public health
Describe patients' stories about their pathways into potentially preventable hospitalizations.
Keyword(s): Asian and Pacific Islanders, Quality of Care
Qualified on the content I am responsible for because: I am the PI of a 5-year project about potentially preventable hospitalizations in Asian and Pacific Islander subgroups. This is the third year of the project.
Any relevant financial relationships? No
I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.