Translating and Implementing the National Standards for Systems of Care for CYSHCN in States

To foster action within states to improve the quality of systems of care for CYSHCN, in 2013 the Lucille Packard Foundation (LPF) supported the Association of Maternal and Child Health Programs (AMCHP) to convene a workgroup of national and state leaders¯representing state Title V CYSHCN programs, health plans, Medicaid and CHIP agencies, pediatric providers, children’s hospitals, insurers, health services researchers, families/consumers, and others¯ to develop a set of structure and process standards that together represent the necessary components of a comprehensive, quality system of care for CYSHCN.  The National Standards for Systems of Care for CYSHCN were released in March 2014. With continued support from LPF, AMCHP has (1) produced a number of tools and resources and (2) is provided targeted technical assistance to assist state Title V CYSHCN programs in assessing systems of care for CYSCHN using the Standards, and to orient and engage system partners with the Standards framework in order to improve systems serving CYSHCN and their families. This presentation will describe two major AMCHP initiatives that have been used to promote, translate, and implement the Standards in states – the Standards Action Learning Collaborative and the Leadership Institute for CYSHCN Directors. Comparisons of early results, successes and challenges will be discussed across both models and emerging systems of care issues at the state and national level will be discussed.