Supporting decision making to increase engagement with early hearing detection and intervention efforts
A focus group of mothers of children with PHL identified barriers to follow-up. Stakeholders, who included audiologists, educators, parent representatives, and public health professionals, informed the development of the decision support tool. We evaluated the tool in accordance with the International Patient Decision Aid Standards. A convenient sample of women and parents of newborns at an Ohio birthing hospital tested the tool.
The decision support tool presents risks and benefits associated with obtaining early diagnosis or delaying diagnostic confirmation. Stakeholder input significantly shaped the final product by addressing the identified barriers to follow-up and concerns of both professionals and parents. A “virtual” parent partner was added to guide users through the tool.
Stakeholder engagement helped produce a decision support tool that will aid professional communication with families as they make informed decisions following a failed newborn hearing screening.
Learning Areas:Conduct evaluation related to programs, research, and other areas of practice
Other professions or practice related to public health
Public health or related research
Social and behavioral sciences
Describe the development, implementation and evaluation of a decision support tool created to help mothers adhere to recommendations following a non-passed newborn hearing screening.
Keyword(s): Decision-Making, Perinatal Health
Qualified on the content I am responsible for because: I have been the co-principal investigator on several federal or state funded grants focusing on health-related decision making. Among my scientific interests has been the development of decision aids and other tools that facilitate shared decision making.
Any relevant financial relationships? No
I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.