Getting it Right: Developing Disability Status Questions to Address Equity in Care
Methods: We conducted 8 focus groups with people with disabilities and caregivers who represented a broad spectrum of disabilities. Additionally, we interviewed physicians from a variety of specialties. Two members of the research team conducted an inductive, thematic analysis on the participants’ narratives.
Results: Both patients and physicians characterized the HHS disability status questions as comprehensive and appropriate. However, they noted the omission of questions that addressed autism, communication disabilities and learning disabilities. Both people with disabilities and physicians wanted the questions to include inquiries about assistive devices or assistance with an activity. Patients and physicians thought it critical that the questions provide specific information that could be used in the health care encounter and, therefore, found questions about dressing, bathing and running errands irrelevant.
Conclusions: The participants recommended slight modifications of the existing HHS questions. Further refinement and validation is needed to ensure that modified questions accurately and comprehensively identify patients with disabilities in the health care setting. Through patient-centered questions that provide actionable information, healthcare organizations can provide more equitable, patient-centered care to patients with disabilities.
Learning Areas:Administration, management, leadership
Other professions or practice related to public health
Describe patient and provider perspectives on what information healthcare organizations should collect in order to provide accommodations in the clinical encounter and identify potential disparities in care.
Keyword(s): Disabilities, Health Disparities/Inequities
Qualified on the content I am responsible for because: I have a PhD in Rehabilitation Sciences in addition to a MS in Speech-Language Pathology and a MPH in Health Policy and Systems. I just finished a Switzer Fellowship through NIDRR to explore documentation of patients' disability status by healthcare organizations. I have published a commentary on this topic and have a paper currently under review. I have lead numerous qualitative studies with individuals with disabilities.
Any relevant financial relationships? No
I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.