Beyond the academic needs of young adults on the autism spectrum: The ethical and public health imperative of meeting the healthcare needs of adults with ASD and their caregivers

According to the most recent statistics compiled by the Centers for Disease Control 1 in 68 children has an autism spectrum disorder (ASD) in the US.  These children will eventually grow up to be adults. While the current healthcare and educational systems have been ramping up to meet the needs of children, young adults with ASD have not been as fortunate.  A study published in Pediatrics found that young adults with autism face disparities when accessing healthcare services beyond those faced by young adults with other disabilities.   This presentation will examine the principles of both public health ethics and bioethics that support improved education for healthcare providers and students across the healthcare continuum to better meet the needs of young adults with ASD and their families.  Currently, parents typically care for their adult children with autism. As those parents age, however, they may have their own healthcare demands.  Educated healthcare professionals can not only provide a smoother transition to adulthood for youth with ASD, but can help families plan and prepare for the future, improving the health and well-being not only of the young adult but of their families as well.  The presentation will review existing legal and policy mechanisms currently in place and make other recommendations reflecting the ethical principles of autonomy, beneficence and justice.