Online Program

Assessing the Health Promotion Needs of Center for Independent Living Consumers with Physical Disabilities

Tuesday, November 3, 2015

D.E. Nary, PhD, Research and Training Center on Independent Living, University of Kansas, Lawrence, KS
J.a. Summers, Ph.D., Research and Training Center on Independent Living, University of Kansas, Lawrence, KS
M.N. Lounds, Research and Training Center on Independent Living, University of Kansas, Lawrence, KS
Centers for Independent Living (CILs) staff members provide vital services to assist consumers with disabilities in achieving and maintaining community living; these organizations could be trusted sources in providing targeted health information. As first steps in devising a Health Promotion Assistance Tool for CIL staff to use with consumers, this project conducted a Needs Assessment study to collect feedback on what information would be most useful for consumers with physical disabilities. First, researchers interviewed key informants from a sample of CIL staff members to gain input for a survey on the content of the proposed tool. Then, they disseminated the survey by email to 426 CILs listed in a national data bank, and received responses from 182 staff members from 93 CILs.  CIL staff reported that their consumers experienced a variety of chronic conditions (e.g., depression, diabetes, high blood pressure) in addition to their physical disabilities, and that they also experienced secondary health conditions such as chronic pain and depression.  Transportation was most frequently reported as a barrier to obtaining health care services. CIL staff reported also that they believed their consumers were in need of supports to enable them to engage in preventive health care.   We discuss implications for these findings to our further research. 

Learning Areas:

Administer health education strategies, interventions and programs
Chronic disease management and prevention
Planning of health education strategies, interventions, and programs

Learning Objectives:
Identify the physical disabilities, chronic conditions, and secondary conditions more frequently reported by CIL consumers Describe the barriers to health care and health promotion most frequently experienced by CIL consumers, as reported by staff members who work with them List the general health care screenings for which CIL consumers need more information

Keyword(s): Disabilities, Health Promotion and Education

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I have worked as a researcher in the area of health promotion and community participation of people with disabilities for almost 20 years. I have also worked as a staff member at several independent living centers, and understand the challenges work working in this field.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.