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Turning the Research Paradigm: Setting the Research Agenda and Priorities Through a Patient-Directed Queries Network (PDQNet)
We have recently initiated the PDQNet project in order to study engagement methods from a patient/stakeholder perspective. The study will describe the research agenda setting and prioritization processes currently being used by patient groups and community organizations, and then, with their assistance, develop a methodology that helps them further improve their capacity to engage with researchers.
The 3-year project has three aims:
Aim #1: With input from exemplary patient and community organizations, and the results of a comprehensive horizon scan and key informant interviews, produce a Guide that will facilitate community-academic partnerships for research.
Aim #2: Using qualitative methods, help participant organizations describe the effective methods they have used to engage with researchers, identify limitations and opportunities to enhance engagement in these settings, and speculate on ways to improve engagement methods.
Aim #3: Help participating organizations identify current research prioritization methods, evaluate and discuss conceptual Value of Information as a way to improve those methods, and combine ideas and suggestions into a set of proposed principles.
The results of the study will include a set of reports, peer-reviewed publications, and presentations intended to advance the engagement and prioritization methods used by patient groups and community organizations intending to improve patient-centered care and community-engaged health research.
Learning Areas:
Clinical medicine applied in public healthDiversity and culture
Other professions or practice related to public health
Provision of health care to the public
Public health or related research
Learning Objectives:
Describe the Patient-Directed Queries Network (PDQNet) project.
Describe how the PDQNet project will help PCORI gain a better understanding of how community-based organizations and patient groups can help PCORI set the research agenda and priorities for primary care and community health research.
Keyword(s): Patient-Centered Care, Community-Based Research (CBPR)
Qualified on the content I am responsible for because: Since 2001, I have been working closely with a large network of community primary care practices throughout Oklahoma to improve the quality and safety of care through translational practice-based health services research, comparative-effectiveness and patient-centered outcomes research. I collaborated in a number of research and quality improvement projects, as a co-Investigator or PI, including preventive services delivery, chronic disease management, practice facilitation, patient-centered care, and clinical decision-support in various care settings.
Any relevant financial relationships? No
I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.