Abstract
Development, implementation, and evaluation of the eXamining Relevance of Articles to Young Survivors (XRAYS) Web-based tool to support informed health decisions for young breast cancer survivors: Findings from the 2nd year
Robin Pugh-Yi, PhD1, Lisa Rezende, Ph.D.2, Julie Huynh2, Susan Friedman, DVM2 and Craig Dearfield, Ph.D.3
(1)Akeso Consulting, LLC, Vienna, VA, (2)FORCE, Tampa, FL, (3)Akeso Consulting, Vienna, VA
APHA 2016 Annual Meeting & Expo (Oct. 29 - Nov. 2, 2016)
Pre-menopausal women diagnosed with breast cancer have unique needs for health information. Information available through the Internet and mainstream media has important gaps in addressing the needs of young women diagnosed with breast cancer. To address these needs, Facing Our Risk of Cancer Empowered (FORCE) is developing and implementing the eXamining Relevance of Articles to Young Survivors (XRAYS), a Web-based tool that provides summary articles on recent research findings, quality, and implications. FORCE researchers developed a system to rate the relevance and evidence quality for research studies as well as the quality of media reports on research. FORCE then developed and pilot tested XRAYS. An independent evaluator conducted focus groups and key informant interviews to obtain feedback from the target audience. FORCE analysts and Web-site designers applied results to revising the XRAYS design. Results show that the target audience wants a tool that provides: 1) a brief, simple overview of study design and key findings that links to more detailed information, 2) a clear indication of whom research results are relevant for, 3) an explanation of research strengths, weaknesses, and caveats, and 4) suggested questions to discuss with health care providers. Study participants unanimously agreed that XRAYS meets a critical need for health information by answering their key questions about research and its implications. All respondents stated that they would use XRAYS to inform their health-related decisions. The presentation will describe the development process, including how feedback was solicited and incorporated, and discuss implications for health communications.
Administer health education strategies, interventions and programs Assessment of individual and community needs for health education Conduct evaluation related to programs, research, and other areas of practice Implementation of health education strategies, interventions and programs Planning of health education strategies, interventions, and programs